You know how I don’t know a lot about science or research, so this might be a daft question, but what account is made for cognitive dysfunction?...
[ATTACH] The wording in full - also “where it is relevant tome taking part” it’s really odd wording. I tried to open the patient info sheet but I...
Do they mean the University’s “regulatory authorities” or what? Who are these regulatory authorities? Info Commissioners Office?
And most decode me participants found CBT unhelpful and GET [ATTACH] [ATTACH] And that’s the end of the presentation.
So in the presentation Chris Ponting is explaining the patient involvement in amending a particular question wording, because PEM is worsening of...
Absolutely! I’m totally projecting. Iam interested to hear more about item 1 - the social care pilot
ME Association Statement: Improving healthcare for people with ME/CFS and Long Covid May 14, 2024 The ME Association is committed to working with...
The “buying adspace on GP surgery screens” was a bit of a “sharp intake of breath” but I guess it is raising awareness. The bitter neglected by...
I saw this story today https://meassociation.org.uk/2024/05/me-association-statement-improving-healthcare-for-people-with-me-cfs-and-long-covid/...
Nor are woodland activity adventurers.
Bringing over from a thread about BACME Tyson and Gladwell due to speak at conference about their PROMS on 16 May
Ha ha ha ha That’s made me feel happy I can no longer work I no longer need to take part in such psychobabble “away-day” offerings
They don’t have Myalgic encephalopathy/encephalomyelitis/ME orME/CFS as a heading under M either…
Tyson and Gladwell appearing to talk about PROMS…
It’s fine. These people have an unknown novel condition, which means they’re the experts. If they go back too early, it’s on them. do I need to...
I think it was because he was promoting the Free Speech Union stuff. This was on linked in...
I didn’t want to have to look through his timeline but I saw some other AfME dragging. AfME is all over decodeME so I’m hoping chickens will come...
He can “drag” or try to smear AfME all he likes, but nobody cares what a charity’s involvement in some research was, over a decade ago, which...
The whole thing gives “post truth” DARVO vibes
The whole point of his tweets is to say AfME had ideological bias, and despite designing part of the PACE trial, after the results were in, they...
Separate names with a comma.
