Can we/Millie’s supporters get the Coroner in Exeter to do that now before the inquest, so it can help? https://www.devoncoroners.org.uk/
This is the danger with a “diagnosis of exclusion”. You can later overturn it, by arguing it was wrong as the true diagnosis is psychological.
Oh, but a coroner can’t do something for Millie McAnish who is in hospital now, in a different area. Maeve’s inquest is not until July in any...
Is the coroner involved? There has not been a death.
So are the NHS able to override and/or disregard a private diagnosis?
I had noticed in the reporting somewhere it said something like “it is claimed she has ME/CFS” can’t remember where, might do a little review. It...
How many times will this wheel be re-invented? NICE published its Baseline Assessment tool in 2021 (Baseline in the classic sense, not the...
I’m trying to imagine other Clinician groups creating guidance with the option to include WRAP How might the public/patients react? If you...
Yes well my cat may be useful.
Yes - a bit like the deflated look of a new Dr when they ask if I’ve had my vit D levels checked? and I point out I take it daily, have done for a...
We know that pwME are considered disagreeable, and resistant to “treatment” by healthcare professionals particularly ones of the BSP persuasion. I...
“Just pick out the bits you can eat” my life as a vegetarian who always gets served meat “Just pick out the bits you need” my life with ME in an...
This is the contents list for the WRAP - it’s basically a workbook for the patient to fill in. Bold is my emphasis, the more unhelpful sections...
I just use a wellness wheel. I’ve changed a few of the topics a bit.
WRAP advocates exercise, alongside lots of things pwME can’t do like talking to someone (sarcasm! I often can’t talk) It’s very much not specific...
Anyway I have a philosophical strongly-held belief, not merely an opinion, that I deserve treatment for my ME which is biologically tested and...
Ask David Putrino, he’s collecting my (and others) visible wearable data.
Wow wow wow @Trish excellent sleuthing. I’m available if anyone needs me to - get things mixed up, moan, have a general suspicion “somethings...
So was it the MEA mixing them up by quoting TIMES in an article about Gladwell CFQ and Tyson PROMS? my head spins.
Hang on I’m confusing myself there are 3 projects Gladwell’s review of Chaldea Fatigue Questionnaire TIMES PROMS Gladwell...
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