Well, yes I do think they’re very obviously related TIMES started in Manchester where Tyson is based What a sticky mess
I think - confusingly- two quotes were from Gladwell’s report (TIMES) and the other two were from Tyson’s PROMS The whole article is a hodge-poge...
Me and Lc are basically the same thing, apart from when they’re not. It’s important to group them together but keep them separate. Long Covid is...
If the NHS wants ME PROMS, fine. I think they’re redundant, but that’s their business. I don’t see how it’s £90k of the MEA’s biomedical research...
The NHS is barely serving people with Cancer, we shouldn’t really be surprised. Someone asked me today- what Consultants are in my local clinic...
How do I get in on this Research thing? I don’t want to be paid. I just want to publish a paper supporting my point of view, after surveying about...
It’s formatted fine for me. It’s the categories they’ve chosen to “blur” that’s confusing.
This MEA scale is confusing https://meassociation.org.uk/wp-content/uploads/DISABILITY-RATING-SCALE-APRIL-2024.pdf
A researcher with ME is not a synecdoche anyway. When I was mild, 8 had no concept of what it was like to be moderate. Then I got severe, and...
Nice idea, but still needs washing every day!
Dr David Putrino is using Visible data for research. Apparently Visible has become the largest dataset in the world for biometrics, symptoms and...
I have to wash my hair otherwise my scalp cracks and bleeds, so I have to wash every day. I wear pyjamas every day, change once after shower. Only...
I once used hypnotism to cure a phobia, and calmly chanted myself into actual danger whilst not being “afraid” of something relatively harmless,...
It’s the mystery of the “baseline” isn’t it. According to Visible app, and the workwell foundation paper it’s based on, my baseline is far lower...
It’s just a crazy revelation, too. Everyone “should” be doing much less than we’d think, for our own good.
Amen. at the risk of going circular, I am an unreliable narrator however my Visible and my Fitbit give me an at-a-glance graph/data/csv download...
I suppose it’s useful in a way. I have a guideline which shows what is “too much” whereas usually people assume you’re doing nothing because you...
Yes, I tend to have to “prep” in order to have a “day off” I don’t know why I thought it would be easy? My allowance is enough to look after...
Thanks, I’m not great with the quotes but this is what I was saying. Anything can be “evidence” a photo of my unmade bed can be evidence. Not...
Separate names with a comma.
