Yes-that’s it thanks. edit to add -point 2 of Sarah’s reply “at no point…research outcome measures” In the MEA news item yesterday, I think it...
Oh he’s really going for it. I don’t think they’re going to do an inquiry into themselves, give it another 20 years so the plausible deniability...
It’s all a bit much for me just now, but there was discussion with Sarah Tyson about some question having an answer along the lines of some,...
So it seems Gladwell was working on this report, evaluating the Chalder Fatigue Scale, prior to the pandemic. Luckily, it’s shown that it has...
Statement by Sarah Tyson
A report is out https://meassociation.org.uk/2024/04/patient-reported-outcome-measures-proms-in-me-cfs/ just going to read it This is Gladwell’s...
I’ve been making an effort to try to do one day per week under my daily allowance. Of course, I could always alter the daily allowance myself, but...
I hate that it looks like they’re going to go through what we went through.
Currently on MEA’s insta stories - the name in the link says it all...
Good to know
Side-question Did PACE ever address sex differences? I only ask because I become very exhausted when I have a period. That’s always been the case,...
But Sarah Tyson said he is a “good bloke” who “gets it”. I think a side-by-side of this PROMS against NICE 2021 guidance will be needed, I feel...
Somewhere in the NHS PROMS info, they said the data identified recovery time was quicker where a certain brand of replacement hip was used, so...
I was rooting around the published accounts, I see the MeA also employed an additional short term employee to “embed” the 2021 NICE guideance...
I feel like they aren’t being transparent. Because they’re not.
I think there are at least two different things happening with this issue and this thread. 1. The MEA have funded Tyson et al to do a piece of...
Aren’t many ME clinics staffed by OTs and Physiotherapists anyway?
I’m convinced (my opinion only) there is more to this, the PROMS will be used in the Long Covid clinics and in a few years the NHSwill be crowing...
Definition of madness, doing the same thing repeatedly and expecting a different outcome!
I feel like the “and long Covid” part of this whole thing is relevant, too.They’re rapidly being chucked in with us and having some tick-box “82%...
Separate names with a comma.
