but the clinic won’t accept them as a patient
This is true, but the point being - why are services which won’t accept severe/very severe patients asking a PROMS question about if your illness...
I thought there were no services for severe/very severe in the NHS? The first question on the PROMS Sarah showed was to categorise the level of...
I think the MEA needs to clarify why they funded this. It’s becoming less and less like the biomedical research they claim to fund.
Sarah Tyson explained what the gold-standard techniques were earlier in the thread.I think they’re applying the gold to the outcome measurement...
We’re supposed to be able to give the data or health reports to our clinicians - like they care- so they can help us. Good luck with that.
I think the FUNCAP is supposed to gather like 12 months of data, it’s to give a view over time if things vary (or not) we all have better or worse...
The health reports are different, they’re generated from your info. It should be above health report on the profile page. Maybe the monthly...
I thought the letters were brilliant, thank you for all your hard work!
And a discussion from the other thread - how does funding PROMS fit the MeA’s criteria. Some suggestions were made of how they might argue it...
Some PROMS info from NHS data...
Does anyone really measure how they’ve been in “a month” I can do days, maybe weeks as a summary of great/good/bad/awful or whatever scale, but a...
And this is the issue - PROMS is going to measure people who attend an NHS specialist clinic. We know many people are doing their own monitoring...
I don’t know how to move my messages over, apologies. Trish has summarised most of the ideas. 1. Tyson et al approached the MEA asking for funding...
I don’t think a “core data set” should be generated by data from NHS specialist clinics, because that’s going to be skewed by the fact that very...
I found this organisation. They have a section on Equality, Diversity and Inclusion, with videos. One by a University of Manchester Biology...
It only “appears” on the Home Screen once a month, after that it’s listed in your Profile, just above Health Report PDF
It’s the new monthly thing on the home page. I don’t know if it’s because I’m on the paid version though?
Visible has added a monthly self-report item FUNCAP27 I see this questionnaire was discussed here...
Oxymoron is the word I was trying to find!
Separate names with a comma.
