Can I just repeat what I said elsewhere, other questionnaires are like “meh” whereas I feel like FUNCAP looks into my soul!
I’m not a scientist but I’m learning. Not sure where the blame lies here, but the headline on this story made me feel something was off, hence I...
https://meassociation.org.uk/2024/06/me-association-professor-manoj-sivan-to-develop-new-protocol-for-dysautonomia-in-me-cfs-and-long- sorry Dont...
Side issue, but someone doing “something” about all the things you can’t control would be good. And I probably mean a journalist, maybe some...
There was a negative incident fairly recently with Sarah Tyson ! She’s undertaking research funded by the ME Association and has ME herself. She...
Visible doesn’t include sleep data, it asks you whether your sleep was ok/fair/poor/awful. They don’t estimate capacity, they give a rating each...
They are more reliable than a 90 question survey asking you to recall activity in the past month
In Ean’s MEpedia page there’s a good, sourced overview of S Wessely. Including M Williams. I agree the researcher doesn’t need to be “told” of...
Seriously, well done and I hope it’s a useful conversation.
Ok please remember not to threaten their lives, you know how pwME are terrifying and abusive/s
WOW excellent update! Hooray!
He still lives on the Isle of Man and works in IT, and photography. I don’t recall where I saw this, sorry. He fully recovered and I think he gets...
I would firstly reply to the researcher and ask her what is she looking for specifically? As there are several angles -abuse of children and young...
I can see it being apple or discovery+ maybe. Sky is kind of a streamer now too.
I wonder which channel commissioned this/they’re trying to sell to? BBC already got burned with the ear seeds backlash C4 surely has enough...
Imagine the intersection of being fatigued by a very visible illness, and being marginalised because you’re black. Studies have shown...
Excellent email @PhysiosforME thank you
He was seen running and exercising a lot three months after his Covid, so I guess he felt great sometimes.
Just realised, I thought I saw him the other week when I was out. I wasn’t sure as it looked like him but much older. It was in fact him (it’s a...
must have been the next result on the Google search after dyspraxia
Separate names with a comma.
