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  1. Amw66
    Post

    Using adrenalin/epinephrine as a crutch ?

    My daughter terms it " false energy" . Payback is awful.
    Post by: Amw66, Feb 2, 2020 in forum: Home adaptations, mobility and personal care
  2. Amw66
    Post

    Seat for cooking

    Great timing, I was about to post the same query to enable my daughter to continue to dabble in cooking and baking when she is able. Thanks
    Post by: Amw66, Jan 30, 2020 in forum: Home adaptations, mobility and personal care
  3. Amw66
    Post

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    Here pvfs is quite common in teenagers and many struggle with school. Key to this is a tight description of PEM. My son had pvfs, and missed...
    Post by: Amw66, Jan 28, 2020 in forum: ME/CFS research news
  4. Amw66
    Post

    Pathogens associated with triggering ME/CFS - discussion thread

    High ish strep in stool test for daughter. Practitioner advised that it seemed to correlate with both autism and anxiety in their experience (...
    Post by: Amw66, Jan 28, 2020 in forum: Possible causes and predisposing factor discussion
  5. Amw66
    Post

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    This on so many levels
    Post by: Amw66, Jan 25, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  6. Amw66
    Post

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    I have not read the booklet yet, but it is my understanding that those with ME, such as @phil_in_bristol were involved in pulling it together....
    Post by: Amw66, Jan 25, 2020 in forum: Monitoring and pacing
  7. Amw66
    Post

    Efficacy, side effects and withdrawal effects of carnitine

    My daughter had a bad skin reaction to acetyl l carnitine. There was a suggestion this was due to having corn it ( common seemingly) , but she is...
    Post by: Amw66, Jan 22, 2020 in forum: Drug and supplement treatments
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