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  1. Kafka
    Post

    Caretaking resources and info needed

    @Kalliope @Snowdrop @Jan Thankyou for the resources! I will get the book and check out the other links.
    Post by: Kafka, Apr 11, 2018 in forum: Caregiver support
  2. Kafka
    Thread

    Caretaking resources and info needed

    My 33 yr old daughter is 95% bed bound. Ill for 2-3 years, and progressively getting worse though we are trying treatments with a ME specialist...
    Thread by: Kafka, Apr 11, 2018, 9 replies, in forum: Caregiver support
  3. Kafka
    Post

    ME Caregivers Connect!

    Is there a way to get a recording of this call? I missed this and would love to get more info
    Post by: Kafka, Apr 11, 2018 in forum: Caregiver support
  4. Kafka
    Post

    Protein problems

    I'm going to throw in my humble two cents... Possible magnesium deficiency? Muscle cramps & panic attacks are both symptoms Blood work does not...
    Post by: Kafka, Nov 18, 2017 in forum: Gastrointestinal and Urinary
  5. Kafka
    Post

    What is the course of your ME/CFS?

    I never had OI issues - but my youngest daughter does. The PEM, for me, was the very first symptom - the moment I realized that if I hiked a...
    Post by: Kafka, Nov 13, 2017 in forum: Post-Exertional malaise and fatigue
  6. Kafka
    Post

    What is the course of your ME/CFS?

    I felt like this too and had the same experience with exercise. However, in remission, I find I'm able to do everything - whatever was happening...
    Post by: Kafka, Nov 13, 2017 in forum: Post-Exertional malaise and fatigue
  7. Kafka
    Post

    What is the course of your ME/CFS?

    Started off mild - steady, gradual worsening over the years. Each worsening was the result of over exertion as I was still struggling to exercise...
    Post by: Kafka, Nov 13, 2017 in forum: Post-Exertional malaise and fatigue
  8. Kafka
    Post

    Seriously craving nuts to eat - why?

    I just had a two day binge on cashew nuts and chocolate. Stopped my nightly foot cramps - away from home and off my regular diet - deduced it was...
    Post by: Kafka, Nov 7, 2017 in forum: Gastrointestinal and Urinary
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