EDITED/APOLOGIES: I'd meant to post the below, and the top bit was half-formed on phone but not checked. I will do so and post that so once I've...
I think Catherine tates grandma character could do a powerful one along these lines if she pitched it right that one could actually make a...
I think the papers that I’ve been mentioning recently show that the comment about it not being used in research are a bit disingenuous and a flase...
PLease move if in wrong place I just found the following pages on 'best interests' - I'm sure people have read these sorts of things in many...
I was thinking along these lines as the reason for the issue in the UK being nothing to do with patients specifically, but didn't know the details...
I think it is definitely worth us switching to that thread and looking through his criticisms in detail I'm minded they went into that knowing...
I don't argue with that - but I thought when this project was first advertised that they made it sound like the reason for it and purpose of the...
More like 'the hypnotism really works (for fear of heights, certainly 'on paper') but it turns out they had a balance issue (say Ménière's disease...
And how on earth is this PROM going to identify what any clinic is 'doing well'? I'm very familiar with benchmarking and passing on/exchange of...
From MEA press release (my bolding): "Well-developed assessment tools that represent people’s experience and produce robust, good quality...
I suspected it was based on 'rolling wave'. I've tried googling but there is so much on it being a type of agile planning that I've no chance My...
100% agree on the terminology. It seems one of the most straightforward and fair asks for us to fix to get a terminology that does what it says on...
Another thing that strikes me as worth looking into / considering , having read the Crawley et al (2013) inc P D White paper (who found no result...
MEA article: "The research team have personal experience of ME/CFS so we understand the energy cost of completing the surveys. Please know that...
Well this was something as an article/advertorial put together focused on trying to PR what has been happening rather, yes it is mostly about...
I hope that the emphasis on physical function being the main measure will be a firm line from the ME Association And , bearing that in mind,...
well that is what they put on it as their suggestion. But of course the only thing the actual research was doing: Trial Report - Exploring the...
In fact on that note that is why I slightly am sympathetic of some of the truly evangelised or saying wrong thing pwme who’ve been thru what is a...
The thing is it isn’t proper psychology. It has been removing the science part that started to try and get in that would have told eg medics how...
Plus of course it isn’t that - there are actual risks and threats. people who don’t shut up have things done to them because‘how dare you’ or...
Separate names with a comma.
