In a way it’s one of the few where it can be both/isn’t an issue having those two as long as clarified when needed. I see rolling PEM as when you...
I know exactly what you mean. Plus there are a lot of get out of jail free cards someone can tell themselves even if they were to see someone...
It is interesting reading through the MEA news item on this - where it mentions LC potentially, or at least more specifically clinics like the...
I agree - and I think on the basis that there were a few key, and persistent - or one could say pernicious (given how many and such an extended...
Yep. I remember Sarah saying that it/they would be likely to end up being done by someone anyway, and obviously some might be better than others...
Agreed. Probably not for this thread, or not until/if well-formed questions we might want to put up etc?
I agree that this raises significant questions around informed consent on the PROMS research. Those involved know well enough that if not all...
:laugh:
Sort of yes. It seems the MEA news article from 2011 shows that at that point things were rather 'on the edge' for GET/CBT with physios having...
It was/is @Maat it has just taken me this long to get with the programme on that post, by thinking out loud and doing a lot of pasting phrases...
OK @Maat sorry that I'm basically repeating what you've laid out, but yes it does seem to be quite a clear path. I can see where you have the...
Oh yes and (sorry brain is picking up on things then train of thought spots another to summarise).. to draw attention back up to near the top of...
Not even read the paper yet. But even this line is just much needed, along with a half-decent term that I like because it puts the action and...
IN relation to the conclusion on the paper with Crawley and White (2013) , "Although NHS services are moderately effective in improving fatigue in...
Adding up these dates. I'm starting to wonder whether instead of 'repeating' it is more 'a continuation' ie those who thought they were on the...
This is an aside and isn't to do with any of the PROMS authors here, however I just needed to get it out because I couldn't quite believe it...
Copied from: UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023 This is an aside and...
OK I'm chipping away at reading through this in more detail. I can see exactly what you mean about patterns emerging. And it is interesting to...
And they've claimed the same thing in this paper that they claimed in the one on the other thread (2024): "Participants were a cohort of patients...
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