OK @Maat I have just found the thread for the one released in 2023 that was on PROMs and included Gladwell. Evaluating the ability of patient...
Hmm, I've found this from GLadwell and others on Full article: Evaluating the ability of patient reported outcome measures to represent the...
Hmm I've just read: Thirteen participants took part (seeTable 2) before the COVID-19 pandemic stopped delivery of the face-to-face seminars where...
Anyway, is it possible to analyse this from the perspective of it being done by the people who were planning on saying there is a need for PROMS...
This surprises me again, because I would have assumed a focus group or some sort of working group - or if interviews that they would have at least...
OK so this paper is highly pertinent as its conclusions (and intro) state this makes the case for 'PROMS' being needed. Although it doesn't...
EDITED to add: :thumbup: indeed. But, a bit worrying, as others have mentioned that the bit they are testing is just the 'feasibility and...
And very weird choice that they always choose to go with subjective, having decided that any answer is no-win for disabled person except for their...
Totally agree with that last line. Too true @It's M.E. Linda ! The whole thing is also, however, definitely about having series of egg-timers...
:rofl: and phone autocorrect 'auto-wronging'
Even down to a man [from the MEA] kindly writing that aren't they being generous picking through with her to help her to decide which comments...
and those are treatments of course. which have had proper trials in the first place/are known to be safe and have stats already for those who will...
Thank you. So the same fundamental error : not using or looking at long term outcomes, isn't what this is going to do well at all And there is...
Indeed. I am trying to work out whether the ends are just not meeting due to [EDIT: my] lack of vision and it needing tweaks, or really what this...
my first concern is that for those who are severe, very severe and in a relapse then the questionnaire absolutely needs to begin from the...
I worry that this is treating still potentially the condition like it is managing 'something chronic' but without the illness part. And...
Today I'm increasingly despairing of how the dangerous issues with those very severe haven't had someone/anyone realising it is a crisis of...
I think this issue and what is or isn't need for this (new?/ extended?) remit is worth circling back to as a discussion. I'm trying to mentally...
Interesting list. The drop-out issue is one that fascinates me for the CFS research: using the treatment itself as a filter for survival of the...
Just looked up: A new community rehabilitation and reablement model (england.nhs.uk) and not feeling hugely reassured by "Guiding principles...
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