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  1. MSEsperanza
    Post

    Watt from MRC defends PACE in letter to Times

    The book fits this thread's topic perfectly... From p. 140:
    Post by: MSEsperanza, Aug 28, 2018 in forum: General ME/CFS news
  2. MSEsperanza
    Post

    Dutch journalist asks about pwME's objection to CBT/GET

    Thank you @Grigor -- your blog might be the most apt answer. And thank you @Andy and @adambeyoncelowe for reminding me of @Grigor's blog .
    Post by: MSEsperanza, Aug 28, 2018 in forum: Advocacy Projects and Campaigns
  3. MSEsperanza
    Thread

    Dutch journalist asks about pwME's objection to CBT/GET

    [MEDIA] Would someone who's on twitter please make this dutch journalist aware of... - the S4ME PACE briefing paper:...
    Thread by: MSEsperanza, Aug 28, 2018, 35 replies, in forum: Advocacy Projects and Campaigns
  4. MSEsperanza
    Post

    Hope 4 ME & Fibro Northern Ireland annual conference, Monday 17th September 2018

    link to the conference on eventbrite:...
    Post by: MSEsperanza, Aug 27, 2018 in forum: General ME/CFS news
  5. MSEsperanza
    Post

    The Times - Call for review of ‘flawed’ ME research in Lancet letter

    Do we know whether they have been asked yet? @dave30th, did you contact Carmen Scheibenbogen and her team? (...
    Post by: MSEsperanza, Aug 24, 2018 in forum: General ME/CFS news
  6. MSEsperanza
    Post

    The Times - Call for review of ‘flawed’ ME research in Lancet letter

    I would prefer not to have the private docs involved, seconding @Jonathan Edwards' point: btw, never heard of Dr. Pfeiffer - do you have a...
    Post by: MSEsperanza, Aug 24, 2018 in forum: General ME/CFS news
  7. MSEsperanza
    Post

    BBC Radio London show focusing on ME, 23/08/18

    [MEDIA]
    Post by: MSEsperanza, Aug 23, 2018 in forum: General ME/CFS news
  8. MSEsperanza
    Post

    Europe: EUROMENE

    Thank you both, @Kalliope and @Jonathan Edwards! Such a relief to read this! -- my confidence in Lenny Jason is restored. Very good to know....
    Post by: MSEsperanza, Aug 23, 2018 in forum: News from organisations
  9. MSEsperanza
    Post

    BBC Radio London show focusing on ME, 23/08/18

    [MEDIA] [MEDIA] [MEDIA] [MEDIA]
    Post by: MSEsperanza, Aug 23, 2018 in forum: General ME/CFS news
  10. MSEsperanza
    Post

    Europe: EUROMENE

    Thanks, @Jonathan Edwards. It was not only the BPS bits that irritated me, but also the seemingly low quality of their papers and scientific...
    Post by: MSEsperanza, Aug 23, 2018 in forum: News from organisations
  11. MSEsperanza
    Post

    Europe: EUROMENE

    Doesn't sound good.
    Post by: MSEsperanza, Aug 23, 2018 in forum: News from organisations
  12. MSEsperanza
    Post

    Europe: EUROMENE

    This thread has been merged as both discuss Euromene I hesitated to open this thread, but after I had a second glance at one of the EUROMENE...
    Post by: MSEsperanza, Aug 21, 2018 in forum: News from organisations
  13. MSEsperanza
    Post

    Hyperintense sensorimotor T1 spin echo MRI is associated with brainstem abnormality in CFS, 2018, Barnden et al

    Then, what do forum members think about Michael VanElzakker's ME research project?...
    Post by: MSEsperanza, Aug 21, 2018 in forum: ME/CFS research
  14. MSEsperanza
    Post

    Government and Insurance companies - establishing the BPS model

    Looking at the BPS approach's omnipresence with regard to sociomedical issues (especially pension scheme and rehab related, also for "organic"...
    Post by: MSEsperanza, Aug 19, 2018 in forum: Work, Finances and Disability Insurance
  15. MSEsperanza
    Post

    Hyperintense sensorimotor T1 spin echo MRI is associated with brainstem abnormality in CFS, 2018, Barnden et al

    seems to have just moved: [MEDIA]
    Post by: MSEsperanza, Aug 19, 2018 in forum: ME/CFS research
  16. MSEsperanza
    Post

    Hyperintense sensorimotor T1 spin echo MRI is associated with brainstem abnormality in CFS, 2018, Barnden et al

    Thank you, @adambeyoncelowe . Sounds really interesting. But what are "EVs"?
    Post by: MSEsperanza, Aug 19, 2018 in forum: ME/CFS research
  17. MSEsperanza
    Post

    Invisible disabilities: perceptions and barriers to reasonable accommodations in the workplace

    Have not read the (paywalled) article nor watched the video, but it would be interesting what kind of workplace adjustments were discussed. In my...
    Post by: MSEsperanza, Aug 17, 2018 in forum: Work, Finances and Disability Insurance
  18. MSEsperanza
    Post

    The MEpedia page on Myalgic Encephalomyelitis

    I agree with almost every point above, @Robert 1973 . I think we should be cautios with the term "measurable" in your last point, though: Aren't...
    Post by: MSEsperanza, Aug 15, 2018 in forum: MEpedia
  19. MSEsperanza
    Post

    The MEpedia page on Myalgic Encephalomyelitis

    Unfortunately, in Germany, in most cases whether you get an "F" or a "G"-(or other "somatic") ICD-Code diagnosis is extremely relevant for doctors...
    Post by: MSEsperanza, Aug 15, 2018 in forum: MEpedia
  20. MSEsperanza
    Post

    Discussion - Does ME involve brain inflammation?

    Thank you, @Jonathan Edwards. Once again, your answers are very helpful. And once again, I am too slow to ask further, more specified questions...
    Post by: MSEsperanza, Aug 15, 2018 in forum: ME/CFS research
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