This looks great! I am in the USA. ME Action did a similar thing to help patients get ready to meet with their local Congressional...
Did anyone attend the Nov. 12 session? Just curious.
Fair point, maybe I was being too coy.;) But more seriously, I'm trying to be sensitive to anyone on here who still may have strong feelings...
I stumbled across someone who is working on an archive of graphs for various ME issues. Link to twitter account below:...
This information is from the ME Action website, see http://www.meaction.net/2017/10/30/new-living-w-me-support-group-2/ The November and December...
Here's an idea (one of many) for spreading the word about ME while the film Unrest is getting media attention. It started back in October but...
The Truth Is Not Always Nice Posted on November 1, 2017 by Jennie Spotila My parents used to tell me, “If you can’t say something nice, then...
SolveMECFS posted a notice on twitter about this so I'm passing it on. Dr. Fred Friedberg is looking for volunteers for a NIH-funded study:...
My doctor told me those were called fasciculations.
I've been sick since 1990. My symptoms have definitely changed over time. I think the biggest change is that in the beginning I wanted to sleep a...
Thank you for posting the youtube link, @Arnie Pye ! I just watched it. They both did an amazing job! I appreciate that Charles Shepherd...
FYI, I'm on twitter - @ahimsa_pdx I'm happy to like tweets, retweet things, join thunderclaps, use a certain hashtag, and stuff like that. For...
Exactly. For example, my husband and I saw it together. I was expecting to cry but ended up only tearing up a little bit in a few parts. On the...
Thanks! I did it - it was actually quite easy! :) I won't be able to attend myself due to a conflict on Sunday morning with family. But I have...
On Sunday, November 5th (11 am Los Angeles, 2 pm New York, 7 pm London) there will be an overview of volunteering with #MEAction. Community...
@Allele and others, Here's another helpful link when sharing information via email. Unrest will be shown by Independent Lens starting Jan. 8,...
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