@Hutan what a great response. It's got two good arguments, one scientific, one emotional. Both important.
It could be that some long covid patients will benefit from GET but it seems unlikely that it will be the subset with an illness resembling ME/CFS...
[MEDIA] She also limited comments on that tweet to people she follows. She knows that if she didn't, she would get comments explaining how we...
I feel some sympathy with Garner despite the horrible ableism in the article. I also did a lot of weird therapies and had the irrational belief I...
Maybe ME/CFS and long covid does make you go mad, in a way. Patients start believing in weird ideas that promise improvement because they can't...
• Neuropsychological and neurophysiological features of fatigue were studied in post-COVID-19 patients. • Apathy, deficits in executive functions...
By experts you mean specialists, right? How would patients know which specialists they should go to?
Physicians can be good at classifying diseases based on their observable characteristics. From that angle, FND may be a valid diagnosis if only to...
I get visibly weak after long sustained mental activity. This seems very unusual to me. It doesn't make any sense that my limbs would lose...
I'm sure this is all supported by good science and not a confusion of consequences of illness with cause of illness. :rolleyes:
It seems that it's the scientists turn to explain how we got into a situation where ME/CFS has been neglected and nobody involved in pandemic...
At the risk of being off topic, maybe what society needs is an institution tasked with the job of directing research into poorly understood diseases.
Outside the UK there's on average even more neglect of ME/CFS, going as far as not even recognizing it. How can one explain that, if not with a...
The demographic split could be due to long covid and ME/CFS intending to capture different things. Long covid just means "didn't recover quickly...
I think it's more likely that the politicians have been manipulated by BPS people, mostly with misleading research papers. What BPS people have...
Is lack of care really an adequate explanation for the fact that historically no country has seriously attempted to help us patients? In my...
Great article. A journalist who finally says what needs to be said.
It looks as if TG is from the same academic circle as the PACE authors and has more or less the same views. A dangerous situation for long covid...
I've been bitter today (trying not to be) because the best interpretation of what happened is that long covid was created for all sorts of bad...
Maybe he became a good singer because he often felt inadequate.
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