Is it dangerous for people with ME to provoke immune reactions?
The presentation was good but there was no effort put into allowing patients to ask questions.
Post-Exertional Malaise Is Associated with Hypermetabolism, Hypoacetylation and Purine Metabolism Deregulation in ME/CFS Cases...
It's not a fact that they represent "psychological distress or dysfunctional behaviour".
It's a bit ironic that they insist on separating illness and disease while saying body and mind aren't separate. My suspicion is that the...
I'm trying to figure out what I find disturbing about people like Tomlinson. They might smile and speak gently but fundamentally they are...
At least he openly says what he believes. This limits the harm somewhat. Compare to the PACE authors who are clever and always say to journalists...
I suspect they have little contact with patients, and when they do, are unable to understand because they're trained to interpret what is being...
That is a valid position to take.
Prof. Warren Tate said in a just released lecture that an official of the ministry of health who had a funding program for long term diseases told...
It would be useful to create a list of research priorities. Things that haven't been looked at yet, things that need replication.
If we were to rank the mainstream acceptance and respectability of ME/CFS, it would be higher than extreme fringe like electrosensitivity but...
Yes, I recall plenty of example in low profile presentations and some papers where it's only hinted at (like the Sharpe "illness without disease"...
I think the analysis makes an error in treating ME as being equal to other psychosomatic illnesses. In the case of ME there is narrative that says...
I hope that funding bodies notice this. Giving people any more money for similar clinical trials is a complete waste.
I have it figured out. The dysregulation they mean must be biopsychosocial dysregulation. It's whatever you want it to be at the moment. Sleep...
If O'Leary wishes to make a difference, it would be more effective for her to align her message with that of the broader patient community.
Do any influential people in the Forward ME group have these views?
It sounds a bit like the true ME crowd, which seem to sometimes take the position that ME is real and that if CBT/GET work it must be because the...
We investigated the presence of SARS-CoV-2 receptor-binding domain (RBD)–specific antibodies in blood samples of 959 asymptomatic individuals...
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