Having long covid 19 is making some people understand how deep the mistreatment of ME/CFS patients goes. I can't wait to see their reactions when...
He clearly understands that something must have gone wrong for the NICE guidelines to recommend GET and not pacing. Not sure he understands the...
I didn't know that covid 19 would cause EBV reactivation in so many. This sort of mechanism might explain how different pathogens and triggers can...
It's CBT for ME applied to post stroke fatigue. With a no treatment control group compared to a placebo and expectation setting pseudotreatment....
Some interesting data in there. It appears people with subjective health problems that receive specialist care and medication are much less likely...
I don't spend most of my time horizontally (I sit a lot) and am keeping daily activities not far from my exertion/orthostatic stress limit. Yet I...
Maybe I'm getting the theory all wrong and actually training other things. Without any way to see inside the body it's a bit hard. But the general...
There's an easy way to train this reactivity (if it's trainable). I put a pillow on the end of my bed which is 30 cm higher than the mattress....
From https://www.ncbi.nlm.nih.gov/books/NBK53080/ I think I have inadequate reactivity. I've also wondered before if the frequent "low blood...
Not sure. I don't understand how these genetic variants would affect mucus barriers. Alterations in MAIT cells, zonulin, LPS and increased...
Merged thread Surprise Gene Finding Could Give Pathogens and Toxins a Leg Up in ME/CFS Some new information coming out of the Klimas genetic...
Leading German Economist on Corona Policies “The Virus Must Be Contained Before the Economy Can Recover”...
Copied post Maybe she didn't deteriorate on the second CPET because the dose of exertion wasn't enough. If she has been pacing well and isn't...
Maybe she didn't deteriorate on the second CPET because the dose of exertion wasn't enough. If she has been pacing well and isn't severely ill...
It may be confusing to suddenly have the support of understanding professionals, if that was never the case for many years.
It's too slow. There should be more research projects and more researchers.
It would be the ideal moment to circulate a good guide on pacing. Then patients and healthcare professionals dealing with covid 19 can decide for...
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7139782/
@Jonathan Edwards Could a training program that involves lying on a tilt table, and repeatedly alternating between -10 and +10 degree inclination...
Maybe the liver comes up not because it's the center of the illness, but the center of metabolism in the body. If you selected a random metabolite...
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