The pathogenesis of chronic fatigue syndrome (CFS) is unknown but one of the most characteristic features of the illness is fluctuation in...
[MEDIA]
How would GRADE rate the unblinded Rituximab trial?
There is a list of studies here: https://me-pedia.org/wiki/List_of_enterovirus_infection_studies It's strange how little mention the enterovirus...
A possible connection to the horrible heat-induced orthostatic intolerance I get for a few weeks in the beginning of the hot summer.
I don't understand the finer details of GRADE but if it's true that it allows demonstratably flawed science to pass as adequate, then it's flawed...
Even if it doesn't come across as entirely honest, that they have to take this position shows I think how much ground the psychosomatic brigade...
What they are doing is reinforcing stigma rather than dismantling it. If they can't deal with this constructively then they shouldn't be...
The ME denying long covid advocates all seem to be from the UK. What is it with the UK and hatred towards ME? And after disrespecting ME patients,...
I would lik to try a vagus nerve stimulator. Nothing implanted, one of those ear clip ones, if they are any good.
I'm not sorry to say that if you're a LC advocate who intentionally avoids acknowledging similarities to ME/CFS then you're massively unkind and...
At the moment, a lot of different health problems are being lumped into ME/CFS. So much gatekeeping in ME/CFS seems to based on the assumption...
Long covid patients might be motivated to deny the similarity because they're afraid that the association with ME/CFS could burden LC and prevent...
I really don't understand the logic here. It's a bit like those people who seem to think that you can choose your reality. There is quite...
It's the POTS. I also often feel like I'm doing strenuous work when in reality I'm just sitting there. I'm not as severely ill so I don't have to...
Let's hope Chalder doesn't read the forum or she will very soon find this disorder is real, as proven by responses to questionnaires after CBT,...
When I moved out of a dirty city into a beautiful town with many trees and gardens, my physical activity increased without having to force myself....
I have no doubt that Ron's team is doing the best they can.
It's not a contradiction if he wants to test it against a sample of patients with the same illness, instead of a sample of patients with random...
Mitochondrial complex V is also called ATP synthase. A decline in its function seems like it would be a big deal (especially if this affects all...
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