Thank you, for that :) It is so hard to get explanations that have enough detail but are not way above my head.
The only reason for increasing activity is to do things you enjoy or that relieve the pain or boredom. Too many outside people act as if it is a...
I truly feel for you, but ME is different from all other illnesses. We are told that we have to fight, do this, do that, but ME only gets better...
I do not know about definitions but when I was diagnosed about 1984 they spoke about one of the symptoms being malaise in its specific sense of...
I say again :banghead::banghead::banghead:
Biologically, emotions are part of the sympathetic nervous system which sends out hormones and signals that work the body without conscious...
When it comes down to it, the hardware/ software analogy is self serving. It sounds good as a concise catchphrase and has built into it the idea...
Dolphin, in NHS the union rep does their ordinary work usually but if another employee wants them to go with them to a meeting they go along...
You are right. We are trying to find words for something that other people have no concept of. It is all analogies trying to relate their...
Strangely, being much sicker now, I have less significant symptoms. In the ME days it was always said the danger point was when you started to...
Um, don't most people suffer fatigue and pain after being active it goes beyond a certain level? We have had it used against us that the PEM we...
A few people have mentioned stamina in various posts and I think it is an important facet of our disease. My main symptom is fatiguability, not...
The idea of a ceiling effect was used about ME before CFS. It meant that people could sometimes get some improvement, with exercise or a...
Anecdote from my dodgy memory but on an early ME forum one of the members was a biker and he said that SW was obviously afraid to meet with him to...
"Fear avoidance was assessed with six items including ‘Doing less helps symptoms’ and ‘I should avoid exercise when I have symptoms’. Therefore,...
Every now and then I step back and check that I am not being blinded by bias. When I thought about it I noticed a pattern with the attacks against...
A description of ME is being able to lift a bag of potatoes over your head once but not lift a spoon to your mouth five times.I remember this...
An interesting piece which shows that the increasing simplification of medicine down to psychological factors is not universal.
That is interesting beverlyhills. The behaviour of microbes is oversimplifed because that works pragmatically most of the time. It is a pity that...
:banghead::banghead::banghead: :(:(:(
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