I had neck pain which got so bad I was having to spend much of my time lying in bed with blinding headaches. I got the chance to go to a session...
A doctor giving a talk for millions missing spoke about herpes viruses (EBV is one). He expresses amazement that doctors quite willingly accept...
I think we are finally getting the vocabulary to describe what happens in people with ME after exercise. With many diseases people experience post...
The point about exclusionary illnesses is that the illness would be expected to cover everything. It does not mean that if you have one you can't...
:banghead::banghead::banghead:
Byron Hyde discovered a lot of his patients had thyroid cancer but it was dismissed as important because a lot of people have thyroid cancer...
As time has passed previously secret projects have seen the light of day. The Church committee investigation into the CIA brought all sorts of...
Just a couple of points. There are people who manage to continue working or studying full time as long as they rest adequately in the evenings and...
Before the trial started the ME community tried to get it stopped. There were petitions and contact made with the likes of Barnardos and the...
If a higher percentage of patients than in the general population attended a fee paying school it follows that this would change the percentages...
It is intrinsic to PEM - and distinguishes it from post exertional fatigue in other illnesses - that physical exertion can cause cognitive decline...
I have exactly the problems you describe. One early name for ME was epidemic vertigo so it was always a symptom in many people. I have damaged...
I like the description by Lily Chu "I wish to re-emphasize that post-exertional fatigue is not equivalent to post-exertional malaise. As...
I can't remember who it was, but in relation to the 2 day CPET testing they said that the healthy controls complained but the patients would have...
Having a family member involved in this it is a worry. His support has been passed onto a community group which is very good but it is reliant on...
When I was less ill, I was seconded to a committee on child and domestic abuse issues. It was not as rare as you would think for a psychologist or...
They used Oxford which needs 6 months of fatigue such that you can only do 50% of normal. How that level of fatigue is measured is another mystery...
"As the number of patients who completely recover over time was low, recovery was redefined as patients who were ‘recovering with occasional...
When I could still do chores I mentally divided them. Things like ironing and cleaning the top of the kitchen cupboards, not needed. Hoovering...
I think fatigue in ME is like other diseases it can be there or not the problem was when they made it the cardinal symptom. Before that fatigue...
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