The problem with the term "post exertional malaise" is that it can be wrongly interpreted. WE know what we mean but it is easy to make it simply...
In 1987 a fellow member of our ME support group had been treated with interferon. I think he was part of a study but it was long ago. It had not...
Becoming ill in 1968, outdoor life, active no IBS and stayed active and outdoors for years after. (I collapse suddenly rather than feel fatigued)....
I am hoping that the review will be "superseded" as out of date and one which acknowledges all the flaws with BPS research becoming the Cochrane...
So by following the rules while being aware of the controversy Tovey has acted as well as we could hope by accepting the review of individual data...
A diagnostic marker is the ultimate goal, but most diseases are observed first. A similar pattern of symptoms is noted then it is worked out what...
If there isn't an abnormal response to exertion it isn't ME. Simple enough, but we are still stuck with fatigue being seen as cardinal. Chronic...
I think with a lot of diseases there is a pattern of things wrong before they home in on a biomarker or diagnostic test. Even when I was pregnant...
It was about 1994 so attitudes may have changed now but when my friend first became ill her family hoped she "just" had ME like me and not MS....
Very interesting. I have recently read "A Brief History of Everyone who Ever Lived" by Adam Rutherford and it is clear that the information we...
When I applied for ESA in 2014 my GP was happy to do a report for me listing my illnesses. It was really good because I had been afraid to raise...
I think "the last major disease" is the key phrase. It is severely disabling where even so called mild cases have their lives altered in very...
Just got it free in the UK, thank you
I was out Christmas shopping at the weekend, the first time in weeks I have spent any time up in my wheelchair. That night my legs were burning...
I am rarely outside so I take vit D. I asked to be tested for my levels but was given a calcium test instead as they said that was the same thing...
Talking about the "rational choice" being to choose physical instead of psychiatric is another of those sleight of hand distractions. It makes...
Yes, so stop thinking that nothing can go wrong with how it works. It infuriates me that it is acknowledged that blood clotting needs a long...
I find it difficult to watch videos, but this one was said to be really good so I gave it a try. It was stunning to me to hear a doctor talking...
I find it very hard to watch videos and I think many other people with ME have this problem as well.
I've been ill for fifty years now and I am still hard pushed to describe my symptoms. Every time I put something into words it doesn't come out...
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