So the 35 seconds I managed to stand in the GPs surgery were not a good reason for the cardiologist to say confidently that I didn't have POTS?...
I can't think of a way low activity could lead to low blood volume. I never knew what it was, but I had OI right from the start. In those days,...
I think OPs should be banned, but that article was vastly overhyped. One of the researchers said that it would make a difference of five or six...
The sooner the better.
In another of the bitter ironies of ME, we can't do a large scale trial of 2 day CPET testing because it would be unethical as some of the...
To summarise the ways of looking at PACE 1. If you take their results as first acclaimed, 30% of patients recovered. This means the treatment was...
It is worse than that, if you are dealing with real diseases you have to go where the science takes you and you are constrained by facts. If you...
Since it is neurologists involved it is most likely a confusion with chronic fatigue and CFS. The FND sites use fibromyalgia for widespread pain...
You can't get post stroke CFS if by CFS you mean ME! This is another example of the way ME = CFS = fatigue. I am sure that people who have a...
I have been ill for many, many years and have watched the rise and rise of the BPS view, seen their power and duplicity, so forgive me for my...
Finding it hard to move in the morning is a classic sign of arthritis, probably because the joints seize up after lying down for so long. Change...
Talking about horses is interesting as in the 80s or 90s there was talk of horses getting ME. It was a problem for racing horses but was...
Being cautious isn't doing us any good, they will accuse us of it no matter what we say. If the charities had insisted it was a biomedical problem...
In the UK, the measurements for HBA1C are different but the goal is under 50 but under 60 is considered not bad for type 1 (I am 52 and they are...
I would think that they will still want the questions answered and we know they can't do that. An amended review which highlights the high risk of...
We should be applauding progress in the way women are considered by male doctors. They used to think our hormones controlled our thoughts but now...
I am sure I read in the New Scientist a few years ago that US soldier's helmets were being redesigned or they were considering it, because they...
Type 1 diabetes is autoimmune and not lifestyle at all, though this fact is getting lost and some people with it are suffering because of it. The...
The psychologists have been proved wrong over and over again. Lots of diseases have been claimed as psychosomatic, Asthma, cerebral TB, MS,...
It made me quite emotional too :) All those years of being abandoned and now there are people willing to stand beside us.
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