Superficial to the point of banality like all the BPS involvement in neurology. I went to a doctor lead patient group for RA with my MIL. The...
The flu like reaction you got was your immune system kicking in - exactly what the vaccine is meant to do. What we think of as flu like symptoms...
It may not be at all what Ron Davis is thinking, but if you have an infection it mobilises the immune system and all the other things that the...
I do not know if my experience of ME is the same as anyone else's. Recently, I have been exploring within myself to try to find exactly what it is...
I can't watch videos so this may not be relevant, but as a diabetic, I know what I want from the drugs I get from my GP and I certainly don't want...
I wish, I wish I just had to believe something for the pain to go away. I take painkillers, I use distraction, I don't dwell on it, but there it...
In all the time the BPSers have spouted their theories, they have never once actually looked at patient experience, probably because they knew...
I think the variable results in pregnancy have to do with the fact that our basic disease is a problem with energy production. In MS, where the...
"Employment has a positive impact on recovery" This is exactly wrong, how can we have got to this stage, with so much research, so many people...
If I understood correctly, the workwell findings mean that energy production goes like this anaerobic for about 2 minutes then aerobic which is...
That isn't recovery, it is maintenance or stabilisation like what happens when a diabetic takes adequate insulin. It is a goal we should be aiming...
I am very wary of getting arthritis charities involved. Our "fatigue" is not the same, the CPET testing has shown that. It looks like a way to get...
Well if ME research had got going in the 60s there might have been a treatment by 1984 when I first got severe disablement allowance. I could have...
Just an aside, but it is an issue that makes me angry. The issues with the catholic church, and they were just the first now we know it happened...
A positive romberg test was considered to be almost diagnostic for ME. I began to fall when I was crossing roads or big rooms and I realised that...
No matter how much I thought about it, I could NEVER feel any difference when I walked out my door. Some days I managed no problem, others I got a...
Post viral syndrome was not controversial in the 60s and 70s. It seen as commonplace among my family that people could take a good few months to...
If a treatment helps 20 people in a trial, they will argue that the trial was too small to be relevant. If it helps 200 in a trial they will say...
My body temperature is always low so I used to take a bath to heat up. Like others it also helped the pain. But as I got worse, the physical...
I am not sure if this is relevant to what you mean, but for many years I felt that all we needed was proof that the disease was physical. It...
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