A few years ago now, there was a report in the New Scientist about research that showed physical signs in GWS. As usual SW, as leading authority,...
The very first ME association newsletter I read (about 1985!) had an article which said that ME patients had a "ceiling" to how much improvement...
I enjoyed Nick Lane's book on mitochondria " Power, Sex, Suicide: Mitochondria and the meaning of life" and his other books as well. He looks at...
A lot of the confusion is because aerobic activities are ones that are done after you have reached the anaerobic threshold and are respiring...
I have no idea what you mean. I am not being hypocritical or grasping at straws. Some things exist, what people do with those facts is another...
So my GP tried to do this test in her office. Sitting in my wheelchair waiting for my appointment sends my pulse up and makes me faint so when she...
There is already proof of infectious onset. ME was the name given to a disease that came in epidemics, outbreaks and clusters. Even CFS was...
“one true infectious/sudden onset ME” I am sorry you find it a turn off, but for those of us ill since before the invention of CFS it is what ME...
There seems to be several things being mixed together in this thread. You cannot compare ECT as a final resort with CBT given as a first line...
In ME, it was always known that it was exertion and fatigability that were the cardinal symptoms. When the CDC went to Incline Village to...
I think we can rule out thought processes as a cause of disease. Fruit flies get disease, bacteria get disease, plants get disease. I believe my...
Only 25% of sufferers are house or bedbound and I agree that their illness will be exacerbated by inactivity, but for the rest it is different....
There were objections to the PACE trial right from the beginning because there had already been studies done in CBT and GET and they were all...
After being ill with ME for many years I developed autoimmune diseases. Some I am not convinced about, Sjorgren's and MS, but I definitely have...
Deconditioning is not common in ME anyway. While all this was going on, none of them actually asked patients if they were deconditioned (or even...
Paul Cheney spoke about his heart transplant. He said that once he got his new heart it took almost two years before he felt completely well,...
Derek Pheby wanted research to be done asking people who felt they had ME what symptoms they had. Simple, straightforward, commonsense but the...
This July was the 50th anniversary of my becoming ill. As I have become elderly, more and more of my life experiences have become "history" to...
This is happening because of the invention of CFS. Fatigue is a symptom but has been used as a diagnosis for years now so it is no wonder that...
I don't think there is a continuum of our disease, not with the healthy population at least. Everyone with MS has antibodies to myelin not present...
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