I joined AFME when it started but Interaction had a different "cure" in every edition. When one said with confidence that the alignment of your...
Years ago, my GP gave me a relaxation tape to listen to every afternoon. I tried this diligently in those innocent days but had to stop as it made...
I read an article about fatigue in the MS society magazine which had been written about fatigue in rheumatoid arthritis for their magazine - if...
I don't think this is meant to be a competition over who is sickest, just that MS is considered a terrible disabling disease and ME a trivial...
Dr Ian Richardson from Newcastle was one of the last polio experts. He believed polio affected one part of the brain and ME another. (I lost all...
The VP1 test which detects actual viral particles found evidence in the brain of enteroviruses. Patients were getting tested and being found...
Thinking how to describe sensory overload. I experience actual pain and distress in the presence of loud noise. Bright lights make me...
Their results chimed very well with my experience and spelt out the differences between the reaction to exertion in ME and other illnesses. i have...
"But I view the us versus them mentality as inhumane. It's clear to me that there is a group bent on creating a second class of patients: making...
In the long distant past when I was doing microbiology at university it was taken for granted that infections often had a slow recovery. Later...
I have been plagued by this since I was a teenager with ME and it is definitely part of the sensory overload we experience. However my daughter...
At the time I assumed it was Malcolm Hooper's document he was referring to as a "diatribe". Prof. Hooper was invited to prepare a document to be...
These are excellent points and very succinct. Fatigue should be relegated to a minor symptom in just the way that it is for MS. I think I just...
I had always thought PEM was cardinal in all cases of ME but some very severely affected who had previously had PEM now felt they were just...
"Fatigue is an under recognised symptom of endometriosis which could help identify the condition and improve the quality of life for millions of...
What I felt was important for us was the statement that if there was only a treatment with significant harms associated with it, it was better to...
Since PEM is the thing that distinguishes ME from other disease chronic fatigue without it is definitely a different thing. The only exception is...
I think it was tablets. If it had been soaking I might have tried it :) It was in the 80s or early 90s so a long time ago.
I have serious concerns about the ethics involved with LP that I haven't seen mentioned. Parents are desperate for their children to get better so...
Michael S said a few times that if they hadn't changed the recovery level (to 60) then lots of healthy people would have CFS (or something like...
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