In Lily Chu's paper she found that inflammatory symptoms were common after exertion in people with ME but absent in healthy people. This covers...
The other big issue with the LP for children may be outside the science but is surely relevant. Parents are desperate for a cure for their kids...
Numbness of the lips and round the mouth is also seen to be a positive symptom of hysteria. We can't win.
Actually specifying "when you were last well" is a bit of an improvement, but most people have, say, more drowsiness at 65 than at 14 so it is...
ME was never considered idiopathic fatigue of unknown origin, neither was epidemic neuromyasthenia (the clue is in the name) The were considered...
Aberrant movements are not a bodily emotional regulation process. There are many genetic movement disorders which are caused by ion channel...
That makes so much sense. Why do they not ask us to say how much fatigue we have? Of what relevance is how it compares with any particular point...
The document says that symptoms must be "moderate to severe". Most of us have a distorted view of ME. Our mild ME has moderate to severe symptoms....
Like you I have been ill so long I can't remember but they are not specifically asking you to compare with what you were like when you were well,...
It is impossible to fathom why they thought this was a good scale. Why is there not a section for mild fatigue or moderate fatigue? They seem to...
When I was involved with abused children many years ago learned helplessness was used to describe the apathy you often found in them. It was...
I was corrected when I posted recently as I had always read neuromyasthenia, the US name for ME, as neurasthenia. That could be the mistake made...
Does anyone know if they have changed it from usual nowadays?
As is usual with these authors their language is so dense and convoluted that it needs parsing out to find what they mean. When I was starting out...
Not friends.
My husband took a thyroid storm, producing so much thyroxine it burnt up all muscle and his eyes turned yellow as his liver became damaged. He...
Historically doctors needed to make up a narrative to explain symptoms, but to attribute these to stress and overwork nowadays is unforgivable....
SW said it was the new name for neurasthenia in his paper "New Wine in Old Bottles" Rationality and science had no part, just ideology.
I was originally diagnosed with a form of migraine, so because of my frequent bouts of ill health and because blood donation was seen as a great...
I stopped carrying a donor card because of my ME. A friend who had a kidney transplant argued with me because he said organs were needed, yet...
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