Some interesting posts here regarding proline - think I vaguely noticed something that it could be the product of breaking down muscle - Whitney...
Reminds me of advice regarding lobbying in the EU "You need to pin one [MEP] down to doing the legwork" that advice was provided by a UK MEP (now...
Not necessarily insurmountable or easy to address. Chris Armstrong (2015 paper 2016 webinar) found that creatinine, i.e. the compound normally...
Reasonable, i.e. as you highlight the MRC is an independent decision maker; therefore, the APPG cannot influence it directly. However, could the...
I have negative memories of the previous APPG on ME. I recall asking them to request the Government Research laboratories...
How easy is it to measure these compounds? You would need a control group and a test group and establish whether the differences are sufficient....
I really don't understand this stuff; however, --- Yes my immediate thought was I wonder what Karl Morten thinks of this study. I think Karl...
I'm interested in their findings; however, I wonder if we would be better focusing on the GWAS study @Simon M has been involved in promoting. From...
A commonly used prevalence is 0.42 or 0.4% of the adult population --- might have used that approach.
I had a brief look online and I see that Wuerzburg University has received funding under Horizon 2020 i.e. the European Union (much smaller)...
Sorry for suggesting that the answer to everything is a GWAS study. I didn't even know what a GWAS study was until @Simon M did an article on...
I've only glanced at this but I'm not sure what this tells us. Ron Davis's group are currently working on isolating, and identifying, the...
I think we have to engage with the institution (EU Commission) as it exists. While the Commission has stated that it values patient involvement,...
Evelien suggested that I could share this "the Commission has emphasized in its correspondence that it strongly values meaningful involvement of...
Hi @mariovitali I'm no expert on GDPR. We are not an official ME Action "action"; we are independent (at this point in time anyway). The email...
Evelien filed this with the Petitions Committee shortly after her appearance at the Committee. Yes, it deals with the evaluation of grant...
I think this is entirely reasonable. I think AIDS patients eventually got seats at the evaluation table (there is some information on the ME...
Speaking personally I am a little concerned that the wrong research will get funded. However, the Commission will presumably say that they have...
Thanks for the humour. Great bird image - is it an albatross (which one)?
I recall Ron Davis cautioning people with ME i.e. that antivirals may be risky for them ---. I really didn't understand the underlying science but...
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