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  1. FMMM1
    Post

    Economic burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to patients: Comparative study, 2019, Araja et al

    Unfortunately I agree with you i.e. I doubt this captures the reality for many people in economic terms and assistance from the Government is very...
    Post by: FMMM1, Dec 30, 2019 in forum: ME/CFS research
  2. FMMM1
    Post

    Economic burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to patients: Comparative study, 2019, Araja et al

    Thanks everyone @strategist @Michiel Tack @Dolphin
    Post by: FMMM1, Dec 29, 2019 in forum: ME/CFS research
  3. FMMM1
    Post

    Economic burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to patients: Comparative study, 2019, Araja et al

    Can anyone extract the text and post it here - it will make it a bit easier to use. I can't extract it myself. Thanks in advance.
    Post by: FMMM1, Dec 29, 2019 in forum: ME/CFS research
  4. FMMM1
    Post

    Economic burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to patients: Comparative study, 2019, Araja et al

    I'd prefer to use the EUROMENE data as this research was funded by the EU Commission [COST Action initiative]. I think data produced under EU...
    Post by: FMMM1, Dec 29, 2019 in forum: ME/CFS research
  5. FMMM1
    Post

    Economic burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to patients: Comparative study, 2019, Araja et al

    Thanks Andy. I need to look at this to see if I can extract useful data for the EU petition*. Here's an extract from the Abstract "average...
    Post by: FMMM1, Dec 29, 2019 in forum: ME/CFS research
  6. FMMM1
    Post

    Economic burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to patients: Comparative study, 2019, Araja et al

    @strategist I'd basically agree with @Dolphin Haven't read this publication yet; however, speaking generally my view is that the UK figure for...
    Post by: FMMM1, Dec 29, 2019 in forum: ME/CFS research
  7. FMMM1
    Post

    Perturbation of effector and regulatory T cell subsets in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) (2019) Karhan, Unutmaz et al

    I'm getting a little cynical with statements in papers; here's an extract from the Abstract: "using a machine learning algorithm called random...
    Post by: FMMM1, Dec 27, 2019 in forum: ME/CFS research
  8. FMMM1
    Post

    Perturbation of effector and regulatory T cell subsets in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) (2019) Karhan, Unutmaz et al

    I'm sure you're aware of this gene expression data which shows ME is similar to Systemic inflammatory response syndrome (SIRS) [MEDIA] Not...
    Post by: FMMM1, Dec 27, 2019 in forum: ME/CFS research
  9. FMMM1
    Post

    Perturbation of effector and regulatory T cell subsets in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) (2019) Karhan, Unutmaz et al

    Are 'mucosal-associated invariant T cells' (MAIT cells) transient or are they resident i.e. in the gut lining (mucous)? There has been some...
    Post by: FMMM1, Dec 27, 2019 in forum: ME/CFS research
  10. FMMM1
    Post

    Perturbation of effector and regulatory T cell subsets in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) (2019) Karhan, Unutmaz et al

    @strategist Looked at this very briefly and I certainly am no expert. I recall Chris Armstrong's: 2014 paper...
    Post by: FMMM1, Dec 26, 2019 in forum: ME/CFS research
  11. FMMM1
    Post

    Open Medicine Foundation (OMF) fundraising

    Seems like Chris Armstrong has found some interesting metabolites (time 2.20 to 2.50). Possibly the could make a breakthrough; however, I think...
    Post by: FMMM1, Dec 25, 2019 in forum: Fundraising
  12. FMMM1
    Post

    Linda Tannenbaum Talks with Llewellyn King - Dec 2019

    Credit to Llewellyn; he mentions this European Parliamentary petition on ME [Petition No 0204/2019 - supported by ME Action] and the fact that the...
    Post by: FMMM1, Dec 23, 2019 in forum: General Advocacy Discussions
  13. FMMM1
    Post

    Perturbation of effector and regulatory T cell subsets in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) (2019) Karhan, Unutmaz et al

    Slightly scary i.e. a drug trial that wipes your T-cells for ever!
    Post by: FMMM1, Dec 23, 2019 in forum: ME/CFS research
  14. FMMM1
    Post

    Ron Davis latest: more evidence of "something in the blood" (Simon M blog)

    You and Derya Unutmaz?
    Post by: FMMM1, Dec 21, 2019 in forum: ME/CFS research news
  15. FMMM1
    Post

    Ron Davis latest: more evidence of "something in the blood" (Simon M blog)

    I think Karl's really concerned to ensure they don't artificially create this effect. Remember how Ron's red blood cell deformability work...
    Post by: FMMM1, Dec 21, 2019 in forum: ME/CFS research news
  16. FMMM1
    Post

    Ron Davis latest: more evidence of "something in the blood" (Simon M blog)

    I gather there's been some comment on-line regarding "positive" results from Carmen Scheibenbogen's group --- "Immunoadsorption is an apheresis...
    Post by: FMMM1, Dec 21, 2019 in forum: ME/CFS research news
  17. FMMM1
    Post

    Ron Davis latest: more evidence of "something in the blood" (Simon M blog)

    I don't have specialist knowledge; however, Ron mentioned that it should be possible to: identify what the "something in the blood" is; and work...
    Post by: FMMM1, Dec 21, 2019 in forum: ME/CFS research news
  18. FMMM1
    Post

    Elevated blood lactate in resting conditions correlate with post-exertional malaise severity in patients with ME/CFS - Ghali et al Dec 2019

    I associate lactate with Jarred Younger - brain MRI work; based on his recent talk in Scandinavia, I think he's due to publish something soon....
    Post by: FMMM1, Dec 11, 2019 in forum: ME/CFS research
  19. FMMM1
    Post

    (ME/CFS): Investigating care practices pointed out to disparities in diagnosis and treatment across European Union - Strand, Nacul (EUROMENE) 2019

    This MEP responded to our letters regarding the petition - Eleonora Evi Italy So you might consider contacting them --- additional MEPs would also...
    Post by: FMMM1, Dec 9, 2019 in forum: ME/CFS research
  20. FMMM1
    Post

    (ME/CFS): Investigating care practices pointed out to disparities in diagnosis and treatment across European Union - Strand, Nacul (EUROMENE) 2019

    I'd be inclined to contact the decision makers (EU Commissioner Gabriel + ITRE Committee + MEP/s) asking what you want --- ring fenced funding for...
    Post by: FMMM1, Dec 8, 2019 in forum: ME/CFS research
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