Somewhat off topic @Jonathan Edwards but do you think there is a sub-group who have a B-cell autoimmune disease or do you think that those with a...
Sadly I have to agree @rvallee . There are estimated to be 2 million people in the EU with ME (500 million population prevalence approx 0.42%). As...
Thanks @Sly Saint The reply from the Commission is disappointing --- let me tell you about the commercial (lactobacillus) probiotic the EU...
Basically Kynurenine surpresses the immune system; so low Kynurinine may mean more risk of autoimmunity. IDO1/2 convert trypotophan to Kynurinine....
"Here is the 4 hrs video recording of the live streaming of events on 16th" Link courtesy of @Raghav on Phoenix Jarred Younger's presentation...
I wonder if there is a condition, in the NIH award, that they need to engage the public--- in the best traditions of a box ticking exercise --...
This guy Professor -- has been praised by Cort Johnson for his superb communication skills. My impression was there wasn't much substance (e.g....
Yes, I had a very welcome email from Irina von Wiese. You have described the situation very well i.e. we're discovering people like Irina who are...
Here's a little more detail @strategist: The four main EUROMENE working groups: Epidemiology, Biomarkers, Socio-economic, Clinical, are due to...
I agree with what @Andy has said i.e. basically the situation is an organised mess. I think part of the reason reflects Vicky Whittemore's...
Eliana Lacerda, vice-chair, EUROMENE speaking at the EMERGE Conference in March (?) 2019. You can view the video online via the EMERGE website....
Yes we've seen exceptional in Europe - ME gets zero funding (2 million people have ME); Lyme gets 33.9 million euros in 10 years (1 million people...
I'm hoping that we will see applications in the EU. E.g. EUROMENE is due to make recommendations in April 2020 regarding biomarkers. So possibly...
Hi here's a standard letter, i.e. one used in connection with Evelien's petition. You'll find more online e.g. there's one on the ME Action...
Yes; please write to your MEP, & sign the petition, while you still can! Dr Vicky Whittemore (NIH) at Invest in ME Conference (2019): "advocacy...
Just bear in mind that Lyme disease has received EUR 7.8 million for the development of a diagnostic test and EUR 25 million for the development...
The petition has been left open by the PETI Committee and they expect the Commission (bit with budget -- Horizon 2020/Horizon Europe) to update...
yes - There's a "Guide to support the petition" link on this webpage...
There's a "Guide to support the petition" link on this webpage...
Yes you can still sign - I'm not sure when it will be closed, but if you wish to support it, I suggest that you sign it now.
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