Sorry that I missed answering these: I'm slowing down! It is very difficult to get across just how confusing it was to sort through all the...
I think what baffles me is that they have confidence that a treatment or therapy is strong enough to treat or ever cure ME, and yet believe it is...
Not at all, @Lucibee ! There's never a chance of that. Like me, you want to get to grips with the data (and like me, you would have been going...
Sorry, that was a hasty posting. Meal time was approaching and I was required! As the report says at the start, we sent out 57 enquiries. This is...
We sent out a lot more than that. We ended up with 38 that offered rehabilitative treatment and replied: there were two that replied and didn't...
This was one of the hardest pieces of information to sort out. We did ask for follow-up after the treatment had finished, but it seemed as though...
No, my comment above explains that 4 of the 12 that answered that "symptoms may worsen temporarily" did not mention "setbacks", i.e. they were not...
And I didn't answer that properly, did I? It isn't in the report, but going back to the original spreadsheet, I count 4 centres that said...
Rather than read it from the perspective of someone looking for evidence of harm, it might be better to read it from the perspective of someone...
A little-know study on Chronic Fatigue Syndrome (Crowborough Criteria) discovered 100% recovery after full immersion in semi-solid dihydrogen...
The PACE trial had 641 patients, and, over the course of a year, from what we can see from the data released, no-one actually fully recovered in...
Yes, @Jonathan Edwards , I am sure that we agree on most of this. The one thing that I am uncomfortable about though is this idea that you need to...
I understand your comment, but I hope you will understand that, as teachers, we often ended up marking work from students with particular...
True, but for many years they earmarked $6 million per year for ME/CFS, even though it didn't get spent on the sort of stuff we would like. I very...
Moderator note: This post has been copied, and posts discussing it moved from this thread: Patient Representative Reports from Dr Karl Morten's...
The MRC do not work like the American NIH. The NIH earmark a certain amount of money for each category of "illness", and that is the amount on...
If his marks from the three assessors are along the lines of 9, 8, and 3, then it follows the pattern that Jonathan Kerr reported many years ago...
[MEDIA] I did submit a comment when it appeared, but no comments have been shown yet.
Returning to my comment about the number of patients in our ME support group – I was thinking about this on my slow amble with an elderly dog...
Oh yes: definitely. But it is equally true that her diagnosis of EDS was the result of her accidentally being sent to the wrong person to deal...
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