Yes, it does. Thanks for finding the paper @ME/CFS Skeptic. Can anyone see how many people were in the samples? I'll make a thread for that paper...
The psychosomatic people continue putting out the propaganda, here in French, suggesting all physicians should be trained in managing 'this...
They are like a broken record. How is this science? It seems more like propaganda.
On shock index I think I've shared this before - some of my BP and heart rate and derived measures when lying down in the morning, and then...
Yes, and even then, my impression from what the OP said in the latest posts was that they are not recovered. That's not dismissing the idea of...
Posts about orthostatic intolerance have been moved to Orthostatic Intolerance in PwME (POTS?/NMH?) as they are off-topic for this thread.
It looks as though there was a flurry of excitement about it on PR a few years ago, and some people tried it. But there doesn't seem to have been...
The forum thread for this paper is here: Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al
Yes. Except of course when there are. Ectopic pregnancy, stroke.... If these people were in the 'all these symptoms, they are just your brain...
My measurements over months suggested that I did not have POT every day. Heart rate on standing was always tending towards 30 beats per minute,...
Yes, that looks right. [IMG] There are different versions of the PGIC. I don't understand how any scientist could look at the version these...
Thanks Lucibee. It looks as though they have completely changed the way the PGIC is scored, as well as using two different methods of collecting...
yes, sorry if it wasn't clear. Improved relative to the outcome in the 'do nothing' group.
Prompted by the above note on another thread: Mycoplasma is one of the (many) possibilities I have tossed around to try to explain what caused me...
Well, when I learned about POT(S), in the second year of my and my children's illness, I measured it. My son, who it turns out had persisting...
Incredible, a paper on 'we made a website, and look how we included the patients in the work, and how grateful they were'. Stay tuned for their...
Thanks very much @Midnattsol - that list of interventions ... so much time and effort wasted, and it continues Here's the detail on PICO for...
I'm a bit late to this, but the Solve paper is about getting a home for infection-associated chronic conditions. Of course Long covid should be...
Results There were people who didn't attend the initial session or stopped attending the sessions, and that will probably have affected the...
I think, just assuming a normal distribution with that mean and that 95% confidence interval, that there is a 13% chance that the true mean is the...
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