The data is surely going to be messy, with many people in the control group having Covid-19, and many people in both groups having multiple...
More from the rare diseases link Disorders with similar symptoms
More information on Tango2 deficiency here: https://rarediseases.org/rare-diseases/tango2-related-metabolic-encephalopathy-and-arrhythmias/...
Love those ideas, love that ME Poppins clip. And I can definitely hear John Oliver saying 'AT THE SAME TIME'. I reckon Brian Hughes has...
Posts on gastroparesis and gastroptosis have been moved to the Symptom Discussion Thread Gastroparesis
May's update: PETITION UPDATE 30 May 2024 Thanks to our supporters Thank you to the more than 11,000 people who have supported the campaign....
Yes, that's not to say that researchers in NIH might come up with something useful, Hwang's work on WASF3 for example, which was, I think, a case...
That's great that there was that additional benefit of providing feedback on the utility of the CPD module. It was a smart idea to link the essay...
Here's the forum thread on the paper: Developing a blood cell-based diagnostic test for ME/CFS using peripheral blood mononuclear cells, 2023, Xu,...
That's a good point, new mothers may put fatigue down to poor sleep, and so not say that they have unexplained fatigue, or think of it as a...
A number of us get oedema in PEM. If you look at photos of people with PEM, they often have puffy faces, swollen eyelids. So, that's an...
What an interesting question. The decreased risk of post-infection malaise and cognitive problems is very marked. As far as I can see, PASC is...
Welcome to the forum Chris @MelbME. It's good to have you here; thanks for the information about the study.
I'm with you on the pedantry @Andy, the different approach to the disease name jarred each time I read it. But, actually, the essay was very...
It's wonderful to have the Minnesota ME/CFS Alliance supporting the campaign. Thanks very much to @Dakota15 for facilitating that. That brings...
Last one. I've copied the whole 'Implications to practice' section because I think it's a really important conclusion. A diagnosis or a known...
On the difficulties of knowing how much to push the child: I'm not sure that Long Covid is in fact rare in children/young people, nor that...
That excerpt is quite telling. You can see the vulnerability of people to the ideas of health care providers who at least appear to understand....
Yes, it seems to be a sympathetic study. Some excerpts that describe the study, or that people might find useful or interesting: This was a...
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