Yup.
A full neurological assessment includes about 100 pieces of information. A diagnosis is made on the basis of how they all fit together. A single...
She doesn't care and nor do most people. They are just happy the fridge works. Because people are like that. And maybe the engineers really are...
I never suggested censoring them. I think you have over interpreted my cautionary remarks. I have simply pointed out that some people diagnosed...
I am not missing that point at all but there is substantial potential for harm with all sorts of policies and the way they are carried out (like...
I don't think the PROMS project is part of the Delivery Plan. I may be wrong but what I have seen from the working group does not suggest that to...
I had a thought: Let us say Hannah had a fault with her fridge so that it kept beeping an alarm and turning itself off so the food went bad. She...
There is no suggestion that any malice was aimed at patients but perhaps not unreasonably the FND patients objected to being told by ME patients...
That was a very informed answer! @Janna Moen PhD
I think you have just misunderstood that the points I have been making are about the complexity of the reality and the fact that there is no...
This is not quite what I was referring to. I am referring to the documented fact that the apparent denial of FND as a valid diagnosis by PWME has...
Yes, I would include movement disorders and seizures that did not fit with structural lesions. Presentations suggesting specific brain malfunctions.
They were misdiagnosed.
No need for new specialisms. You will always need to have doctors seeing patients fresh and deciding what speciality is most appropriate but that...
Except that you cannot do that every time. Largely because in many cases there are no tests that actually rule many things out. The tests are much...
The blobs in most cases probably aren't causing anything. But I agree you could just call it idiopathic but that has its downside too. We do know...
ME/CFS could be considered functional in operational terms but I wouldn't call it FND because the malfunction may be entirely outside the nervous...
But we have the evidence from the patient's lived experience. The nervous system is malfunctioning - they tell us that and we can see it - but no...
But you must admit that some people with ME/CFS have upset the FND people in that way. As I say, I doubt this. Regular follow up would help but...
Exactly, but when I was practicing most of my colleagues acknowledged this sort of category without that implication. Conversion disorder was...
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