Just to say I was admitted to hospital again last week just for a day for another condition. Obs were taken routinely ( I make sure not to watch...
https://www.facebook.com/OpenMedicineFoundation/ Open Med Foundation fb page is collecting lots of comments
So grateful. Thank you Pineapple Fund.
@Sly Saint That may have been the one I read a couple of years ago. Now I'm on a largish red book "Ramsey's Disease Myalgic Encephalomyelitis...
http://me-pedia.org/wiki/Kunihisa_Miwa Japanese researcher and clinician measures difference in responses of pwme to OI on " good days" and "bad...
A great addition to S4ME. Thanks @Andy for your sterling efforts and Dr Montana for talking with us. What a lovely man. Passionate about science,...
@Hip Your post is extremely interesting. A month ago I bought Dr Simpson's book " Ramsey's disease- ME and the unfortunate creation of ME/CFS"...
@MsUnderstood I think most of us can tolerate disappointment or lack of progress when treated with kindness and compassion. And I'm glad he...
Yes. I've been wondering about this @Mattie. Even bought a second pulsox to check the first. They do differ so obviously something is not...
So sorry you are facing all this @Liv aka Mrs Sowester. I am glad you have your husband and Pickle. What a devastatingly cruel system.
@MsUnderstood I see that you have posted, and many others, but have not yet read the posts. I think your post and others need reading carefully...
Unrest seems to be flying off the shelves. We ordered a copy on Sunday to send to a family member but it hadn't been despatched by 11 this...
@Jonathan Edwards Thanks again for your reply. The way you have expressed it seems logical to me. But if I take myself as a case study, tomorrow...
Interesting@Justy. This is where I go back to PEM which I have severely, so I regard my primary diagnosis as ME. But the mitral valve has to be...
Am sorry you are so unwell @Wonko, and then to have all this piled on top. Wishing you the very best in getting it all sorted out....
Thank you @Jonathan Edwards I had been reading your posts about your sense of responsibility for this belief. The belief still is widespread. The...
@Jonathan Edwards Just a small point. I think cardiologists/one cardiologist believes that hypermobility is linked to mitral valve prolapse. I...
@Trish I know you don't live in Tower Hamlets @Trish . Just an example of what can be done. EDIT:1) crossposted with above. Who knows what is...
@Trish I may be out of date but I think Social Services Departments have a responsibility ( have forgotten the Act) for assessing and fitting...
@Joh, or anyone, help please How do I buy a DVD copy of Unrest? I have bought it on Amazon prime and when I go onto Amazon, I am immediately told...
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