@large donner It might also be worth pointing out that Bristol uni staff i.e. Crawley ( I am presuming that teaching is one of her...
Do we have any Bristol alumni here? I read last week that Russell group universities including Bristol are investigating the wealth of their...
Hi - thanks for starting this thread @Sallycatherineharris I find it hard to describe how the news affected me. It was surprising and actually...
http://cureme.lshtm.ac.uk/the-uk-mecfs-biobank/ Research nurse ( names has disappeared-ugh) recommended following progress on website. There is...
Confirmation received this morning from the research nurse that I am not suitable to provide samples for biobank. It was as I expected. I had...
Had a very prompt reply from the research nurse at the biobank requesting information giving criteria I can't comply with. 1) need to be younger...
I think Invest in ME is currently doing a doubling of donations for a short time. @Jo Best
Thanks Andy. Have contacted them.
@Andy Is there an email address for the biobank?
Have answered primary progressive but have been diagnosed with a heart issue needing surgery so this may be making a significant contribution....
@Graham I meant on the forum because I don't live in Sussex. We came quite a way to see the film. For some reason I wanted to be part of a group...
@Graham @MEMarge It was good to meet you this afternoon in Crowborough. I recognised Graham immediately, and MeMarge almost as quickly. I was...
Thank you @ChrisH It's been helpful to hear from someone who has gone through the experience. Good wishes.
@NelliePledge Hi Nellie- I think yours is a good question. I am not fully clear on the implications of the various diagnoses. I can tell you...
@ChrisH I understand from your last post that you believe your ME to be linked to radio frequencies around your tall apartment building. I am...
Thanks @ChrisH That's a useful summary. It seems unfortunate that having gone through surgery a second time, you cannot reap the full benefits...
@ChrisH Thanks for your interesting post. Could I just check that I am interpreting correctly when I conclude that, once your aortic stenosis was...
@AndyPandy Unsure if you have tried antivirals, but in the link I posted above, Lerner does claim that antivirals improve both cardiac and CFS...
@AndyPandy As I understand it, ME brings with it higher risk of hypermobility and heart valve problems. Perhaps pwme should talk to their gp re...
I understand that pwme are more likely to have hypermobility issues, and that these might be linked to heart valve prolapse- this may just apply...
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