“The meeting will include #MEAction Executive Director, Jennifer Brea, #MEAction’s Director of Global Community & Campaigns, Ben HsuBorger,...
The #MEAction statement is dated Sept 6th and gives a list of attendees headed by Jen Brea. I hope she is doing well currently and does not have...
http://meadvocatesireland.blogspot.com/2018/09/complaint-report-offers-hope-for-those.html I read this a couple of days ago ( have forgotten...
@Jonathan Edwards Have been trying to link to the Times article without success but it is at the top of this thread...
https://www.theguardian.com/global/2018/sep/01/pain-rollercoaster-fibromyalgia-kirsty-young-desert-island-discs A very different type of article...
Thank you @Trish. Had just been following this thread. Glad to see it has been picked up. I do think it needs a response.
https://www.thetimes.co.uk/article/kirsty-young-must-go-softer-on-herself-during-break-from-desert-island-discs-2pkjdbfbn This article by Sarah...
https://www.thetimes.co.uk/article/male-scientists-cut-me-off-after-i-stood-up-for-staff-says-top-biologist-fiona-watt-hbksqh373 Fiona Watt is in...
The letter was edited by the Times, specifically the title. Will post if there is any further information on this.
https://en.m.wikipedia.org/wiki/Simon_Wessely ETA: would it be more accurate to say that Simon Wessely is tweeting......?
I have no idea what MEA will be putting in its letter to the Times but I hope it includes something to the effect that this is an inaccurate...
Didn’t we have a new member early in the summer, a doctor with ME, who was interested in tackling teaching about ME in the medical schools? She...
It’s showing as that when I checked Amazon about a half hour ago. I wondered whether we had been buying so many it had caused price to drop. My...
There has been correspondence on the MEA fb page today requesting the MEA to write to the Times about the inaccuracies about patients in Fiona...
If I get to the stage of researching this, I’ll come back to you @Alvin
Thank you for feeding back this information. It helps put a context to the situation we are facing in gaining MP support which we need if we get a...
I have received replies from both Ed Davey and Nicky Morgan, MPs. Since we hope to have a debate in the full house, and will need as much MP...
https://www.meassociation.org.uk/2018/08/the-times-call-for-review-of-flawed-me-research-in-lancet-letter-21-august-2018/ I have written a note...
Just to add that my MP is one of the 10 signatories. I have sent him an email with a link to the Times article. Anyone else with a connection to...
Thank you @MEMarge, and for your tips @Milo .
Separate names with a comma.