@AndyPandy Thanks for the detail in your reply. Will locate the site tomorrow. I have concluded after the last few weeks' experience that plane...
I think Vince Cable signed one of the petitions, maybe an edm. Maybe he might be interested? In fact maybe all the edm signatories should be...
Is there a problem with this link? Have tried to repost twice on local group.
I posted in the last thread @Mattie travelling by car. Now I need to ask about air travel and carrying wheelchairs. About 4 weeks ago, I did the...
Me too.
I was encouraged by the OMF report on Wed on blood issues with a manuscript submitted for publication, and the potential as a biomarker....
https://www.omf.ngo/2018/08/15/mohsen-nemat-gorgani/ Current research in the rheological properties of red blood cells at the Open Medicine...
@ukxmrv Thank you for the comment and the link. Very interesting. As far as I know the work on blood done in the 1990s by dr Leslie Simpson...
Thank you @Jonathan Edwards. I shall have a think about whether to ask for a referral to a rheumatologist after doing some more reading. I can't...
I'm sorry @Inara, I don't know. I have been following with some curiosity any comments about " sticky blood" and was interested to see Cort's...
https://www.healthrising.org/blog/2018/08/15/sticky-blood-antiphospholipid-syndrome-pots-chronic-fatigue-syndrome-and-fibromyalgia/ I posted...
When I was in NYC in June, I read an article in a journal about something called something like " delayed sleep phase disorder" : it may not have...
I was diagnosed with dry eyes in about 1977 at Surbiton eye hospital. I don't know the name of the test that was used but it seemed as though they...
In the earlier days of my illness, I followed the energy envelope theory with some success. I even went to the gym and, if I had enough energy,...
I have some data from my Fitbit hrm which describes my last week of trying to avoid pem as much as possible. It's not been a usual week because...
@Snowdrop " I think ME will be off the table" I'm inclining to agree. I cannot see how the dep Chief Exec of Nice can be involved otherwise. If...
What is the dep chief executive of Nice doing there giving the closing remarks especially when ME is in the process of being reviewed by Nice?...
@Esther12 I agree with you that it's hard to follow the argument carefully when we don't have one side of the correspondence e.g.what did Lord...
O'Shaughnessy's letter wasn't submitted. Perhaps there is a code which advises that letters written to someone else not be reproduced without the...
I contracted an unpleasant disease in Sri Lanka where I was on holiday in about 2004, d and v etc, 4 years before I was diagnosed with ME. We had...
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