https://www.thetimes.co.uk/article/me-sufferer-merryn-crofts-who-was-dismissed-as-hysterical-vindicated-in-death-lq9j2lc7w The Times today, page...
Open Medicine Foundation's second conference is coming up and I think they have added a third day. Date currently escaping me....
https://www.omf.ngo/2018/05/25/omf-funded-research-overview-2018/ OMF has just posted a list of their funded research. Lots going on. I expect as...
http://www.meassociation.org.uk/2018/05/nice-draft-scoping-report-published/ NICE is holding its scoping meeting today so hopefully we have...
@Gary Burgess . Just listened to this week's programme and then posted it on my fb page. Excellent programme. You are really good at drawing in...
@Esther12 I wish that this bit had not been included in the EDM, I really don't see any benefit to it, and think it would be stronger without:...
I have just been back on to the hospital's fb page where comments have continued to flood in about the deletion of posts. Several have asked for...
@AR68 Please feel free to contact the hospital. I am down for a root canal treatment today so will be inactive.
I have received the following reply to my post from the Royal Liverpool and Broadgreen University hospital. @Joan Crawford of Chester MESH whose...
Thank you for getting in touch Emilia Bona. I commented but my comment is still there reproduced on this page. I commented relatively late. I...
Lecturer in child health. Esther Crawley? Mustn't be negative befor he begins his work.
@MEMarge Seems strange that different rules are being applied to different groups. I think this is going to be a highly important period; also...
https://www.nice.org.uk/guidance/cg53/documents/draft-scope-for-consultation-chronic-fatigue-syndromemyalgic-encephalomyelitis2 Nice scoping...
Isn't @MEMarge our second representative, proposed by @Graham, and duly seconded?
https://www.healthrising.org/blog/2018/05/16/montreal-me-cfs-i-metabolism-the-main-matter-more-exercise-issues-plus-bad-brain-motor/ Maureen...
Still no minutes of the 1st May meeting on the Forward ME website. Since Carol Monaghan is now deputy Chair, I had hoped to read something about...
Well done @Bill. Thanks for writing from across the pond. I do think we need to be pushing our MPs more, but not sure how to do that to those who...
Good to see my MP there now. I have an email expressing strong support for our cause. He has also written to Jeremy Hunt, and Esther MeVeigh...
Also politicians need our votes at times. If we are persistent enough, it is in the interests of politicians to listen. Our seat changed hands...
> On 15 May 2018, at 15:22, MORGAN, Nicky <nicky.morgan.mp@parliament.uk> wrote: >> >> Dear ……………....…. >> >> Thank you for your e-mail and I am...
Separate names with a comma.
