I had what was probably PVFS after getting glandular fever when I was in lower sixth (age 16-17) back in 1982/3, and this continued for a couple...
I think that must be the 'FITNET' trial, discussed on various threads on the forum. It may be that some of the children who 'recovered' have...
So the advice started within the local NHS 'pain service' and then was taken onboard by the local Job Centre, rather than being a national DWP...
If it was me, I would want to know how they had assessed me in each ESA statement. I would also want to know the details of what the tribunal was...
It might be worth you getting it and seeing how the scoring compares with the PIP medical report.
Did you see the actual medical/assessment report that shows how the points were awarded? DId she get put in the Support Group because of limited...
I'm still working my way through the DWP ESA/UC assessors manual, but my impression is that the only way for a person with M.E. (with no other...
To be fair, this isn't necessarily a bad approach - depending on the job seeker's circumstances. It fits with current UK equalities legislation...
Thanks for posting this information. Speaking as someone who, despite having ME for over 25 years, has only been following ME advocacy for the...
Regardless of the size of plate used, I still usually manage to get a lot of its contents either onto the table or onto myself when eating (and...
I think integrating 'CFS/ME' services with pain services is likely to cause more harm to us, than good. My local pain services have been BPS led...
They've done that in my area (Somerset) too! Very difficult to get to even by car, impossible by public transport - they could have located it in...
I agree with regards to CFS/ME clinics. I explained about the right to choose specialist services because 1) It really annoys me how almost all...
Again, this may not be true, despite what they have told you on the phone. You would need to find out from your own CCG what CFS/ME services they...
Regardless of what these services write on their websites (which often incorrectly says that the patient needs to live in a specific area), if...
More info on the NHS e-referral system can be found here:...
They should be able to look on up 'E-referral' which services are 'routinely commissioned' by your local CCG (Clinical Commissioning Group). The...
It wasn't just 'moaning'. Research proposals were actively rejected on the basis of committee discussion. I can't publically say anymore than that.
Yes, the meetings (like NICE ones) were confidential, so I have to be careful what I say. However, it helped my development to be part of these...
During my time as a patient representative with the NIHR, more than once I have been in a room full of consultants, mostly surgeons. Hearing their...
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