I think under the old guidelines the more aware and able to advocate for themselves PWME would have chosen not to mention care plans at all...
Group video conferences cause PEM for me.
Oh ok now they’re coming out - couldn’t stand the charities getting the sensible message out. What planet is Miller on :banghead:
It’s not a great situation but seems like there’s a silver lining of reasonably good publicity People who might have had the initial coverage...
:D:thumbup:
I think people should set out their credentials properly when asking vulnerable people to contact them. Social media isn’t necessarily the wrong...
:banghead::hug:
I don’t think anyone has posted about this before. A change of approach by ME Assn. Some time ago (years??) I remember discussing information...
https://www.nasa.gov/hrp/bed-rest-faqs/ I was wondering what exactly was meant by bed rest. I couldn’t find an explanation by a quick skim of...
Pathetic behaviour
They are following the old adage of not looking a gift horse in the mouth I suppose
German team having a go on the psychosocial relay/gravy train
Agree @Trish wherever GET is mentioned the risk of significant worsening of severity must also be mentioned. Shorter term worsening for most if...
Seems like Bruce Arroll and the Goodfellow Unit have got some unhelpful beliefs that these trials are well conducted
Last paragraph it is not clear yet why they did worse on second 6minutes - yeah right :banghead:
Yes over tight management regimes with demanding performance targets and excessively strict approach to absence which doesn’t allow some...
The interventions mentioned aren’t centred on the needs of the individuals, sausage machine generic workshops telling you you should be more...
https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review Currently on 9929
Best bit about this is the second half of the title, sadly as @Andy pointed out at the start of post 1 it’s not what we would have actually hoped for.
Moderation note hi all just a reminder that posts should address the topic of the thread which is about lessons the ME community can consider...
Separate names with a comma.
