What is it with some Americans? I once convinced one that western Ireland has an extra day of the week.
I've always told everyone who asks about my illness. Nobody's scoffed at it, and thankfully few have said "Have you tried...?". But I've needed a...
Ach, come on you lot. These people staked their whole careers on an all-or-nothing outlook: you think up one bunco, and keep working it on...
Yes, my onset was gradual over months, and I don't know the trigger. There was no illness, just able to do less and less over many months. Odd...
I wonder how match funding works in research? I'm only familiar with a system of favours, where small companies negotiate bits of spare...
The approach in swimming now seems to be that exposure is probably the best way to deal with the virus, since avoiding it doesn't work and most...
I think it's more a request for what information someone holds about you, where they got it from, how they use it, and whether they've shared it...
If it's only viruses, couldn't stool be PCR tested? It wouldn't show tissue abnormalities, but it'd likely pick up the DNA of enteroviruses....
As far as I can make out, none of them are. Practitioners are the modern thing! Doctors are expensive and not all of them stick to the script.
I too get muscle weakness after activity that's challenging enough. The main characteristics are that it's relatively short lived, and there's an...
I mean anybody with a bit of paper showing they've been on a course. It doesn't matter whether it was occupational therapy or psycho-something or...
They must be getting desperate. What was it Desmond Dekker sang? "Shirt it a-tear up, trousers are gone"? "Po-o-o-or me."
Yes, but only if it does have doctors. Doctors with an interest in conditions like ME. The trouble is that practitioners with six months'...
In Britain, there's been some talk in the press about Covid jabs possibly being available for sale next year. At the moment they're only provided...
From @MSEsperanza: It seems they have a new name: WE&ME Foundation https://www.weandmecfs.org/
Not sure they quite get gaslighting. But anyway, of course they shouldn't pretend they can help, and yes it's demoralising for both groups. But...
From @MSEsperanza – Via Martin Rücker/ Mastodon: "Schwer von #MECFS betroffene Künstler*innen haben in einem großen Kraftakt eine Ausstellung...
There might be more than one answer, depending on what's needed from a particular consultation? ME's not something that could really be dealt...
Not at all! I didn't know it had started because I couldn't feel very much. The cable got into a loop at one point near the end of the procedure,...
From the project website. It reads as if they're only working with people currently having treatment at one of these centres, but I don't know for...
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