But when pwME are heading downhill, they're no longer uplifts, are they? By definition, they're now hassles. Jaysus, this is basic stuff.
Your last point is why I wonder whether the general principle is the only thing we really can evaluate reliably. What matters is PEM. Avoiding...
It sounds political to me, and it's possible there could be reasoning behind it. For instance, if they happen to know there are going to be big...
I'd guessed it's probably not entirely different to arts funding. There are Funding Priorities and there is Work You Want To Do, and despite them...
I agree we have quite enough hypotheses, but I wonder if he means (a) we need to test some of them properly, and/or (b) hypothesis-based work is...
I agree that it'd be great to study this, but one of the stumbling blocks is finding a reliable way to identify when rest is needed in order to...
Oral magnesium definitely affects me: muscle pain that has me staggering round the bedroom trying to find a way to get rid of it. I've tried...
Thank you, it's a really good read. Definitely one to bookmark and re-read next time I can't get the words out myself. British folk do call this...
The Twitter thread also gives a link to the presentation, which is stored on a Google drive. There's no indication of whether it's been released...
The last part of this is one of the reasons I think wearables are viable. Yes, of course they're going to vary by brand, operating system,...
Organisers often seem to try and cram too much into these conferences. It's great to hear some of the researchers speak in person, especially...
That's a great photo. So simple, yet says so much. Even after all these years of ME, I can't begin to imagine what it's like to be severely ill....
I read this as being about what goals the services should be developing—which would be fine, and appropriate—but like you, I worry when treatment...
When it comes to assessing the services, I wonder if there are any useful models in other NHS clinics where there are few or no curative or...
Well, that fills me with confidence!
I agree, the thing about pre-illness isn't even required. "PEM results in a marked reduction in activity", full stop. Or better still, "PEM...
I've just seen on the calendar that I'm due my 5th next week. Pfizer's the only one I had trouble with (it seemed to trigger an arrhythmia that...
:rofl:
This is key. I really hope the study will acknowledge that the vast majority of the patient base is effectively shut out of NHS specialist...
Usually the approach seems to be to start with the assumption that patients have access to the aids they normally use. It doesn't matter whether...
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