Yes, so true! I was thinking yesterday as I was failing to nap (and for me, not getting that afternoon nap has a snowballing effect in terms of my...
Exactly! And I think this must be the article I tried to refer to in my just-now post on the old Dan Neuffer book, the paper my MIL read that was...
Honestly, I'm not sure I've ever been out of PEM for at least the last 5 years, maybe more like 10. What I feel on days when I think I can sit...
For me, the chest thing is as I described above, not a pressure but a feeling like all my energy is draining out of my chest and even sitting...
This is very helpful. I can usually tell when I've really overstepped my exertion limit. (I get something I've heard no other pwME mention, which...
What kind of heart symptoms do you have? For me, I regularly get skipped beats and brief episodes of atrial tachycardia, but when I'm really bad,...
Thanks for this, Alex. Very helpful.
Thank you, Alex. I never got as bad cognitively as you have, but I am not learning pacing very well (partly b/c dealing with all my comorbidities...
Would like to know more about this. I've called every feeling of having crashed PEM, whether due to exercise (which I've not been able to do for a...
This is very interesting, Alex. I have TONS of experience (positive) with CBT for very different issues (treatment for body dysmorphia/fear of...
Thank you to all of you. The cannabis thing is interesting. I've had lots of people suggested for various ailments I have, but they weren't...
First, huge apologies for rarely coming on this site (which I recommend to everyone wanting/needing to learn about ME), and then coming on just to...
Thanks for the clarification, Peter. I was guessing a nutritionalist in the UK is something like a "functional medicine physician" here -- often...
Thanks, everyone. My GI was very helpful yesterday. It seems that if one isn't experiencing symptoms as coinciding with bowel habit changes...
Thank you, Peter. This is very helpful. I feel like what you describe as your experience is very similar to mine. I, too, have things I need to...
Luna, did your IBS symptoms coincide with the onset of ME, or a worsening of other ME symptoms? Oh wait--just reread your message and saw that...
I'm glad you had a good night's sleep, and I hope that the relatively small change in diet helps. I find that so many of these elimination diets...
I hope your GP can get you help. I know well about that awful loss of sleep. I hope your GP takes the Hx of colon cancer seriously and orders a...
So glad that you found what was the trigger! I almost never eat potatoes, just sweet potatoes. Same with other nightshades.
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