Thanks so much to all of you about the dietary recommendations. I've actually been seeing a dietitian since 2002 (after a relapse of an eating...
Forgive me if I'm missing other related threads that address this issue; I'm in a bad crash and trying to write this before heading to bed--have a...
I'm very uninformed--who's KDM?
Sasha, I hope by now you've gotten the help you need. My GI issues started when I was about 12--had been on high doses of adult aspirin and NSAIDs...
Wow, Kitty, you are tough! I had to have my second colonoscopy without sedation (the doctor couldn't get an IV in me), and I was screaming the...
Merged thread Eric Topol on the Science Translational Medicine paper I haven't been able to read this yet, and it has probably been posted...
I see this thread was from 4 years ago, approx. I was just reading the Preload Failure article (https://endmecfs.mgh.harvard.edu/heartpreload/),...
This doesn't share any info not already known, and I was disappointed in how little time/attention was given to Long Covid in this piece, but here...
I'm not in good shape right now to write letters, but once I'm better, I will. I'm a patient at UCSF for something else entirely, and maybe as a...
I at first felt so disappointed that monitoring my HR wasn't going to be the easy magic bullet for managing ME--but then, I never had any magic...
I like your approach, Kitty. Very wise. Thanks so much for sharing this.
Yes, I tend to make everything into more of an ordeal than it needs to be. Last time I telehealthed with my ME specialist, she wanted to know my...
Actually, I think this is a great strategy--the idea of "just stopping" when alarm bells are going off, and also diligently scheduling in recovery...
Thanks, Ebb Tide. I think that paying attention to amount of activity, whether physical or mental (or both), may be what I need to do. I keep a...
Kitty, sorry you did so much work to come to the conclusion that HR tracking just wasn't useful for you. But great that you've learned to pace...
Thanks for this, SNT. I'll check it out. Hmm, interesting that neuroinflammation, if evident, would be more an effect than a cause. So much yet...
If I were a doctor, I fear I'd be one of those who fixated on a certain thing--I'm sort of OCD that way, exemplified by how I've been obsessing...
I haven't tracked BP, in part because for a while (this was well before my ME diagnosis), my cardiologist (whom I began seeing because I was...
My mom-in-law over the weekend found an article that suggested the 0.6(220-age) formula was out-of-date, and that the current guideline was to add...
One further question (or maybe saying differently what I was trying to articulate above): when one is in PEM, can one's symptoms not be tied to HR...
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