Simon Wessely: ”I would hazard a guess that the most fruitful area of research will come from a combination of neurosciences and psychology, and...
I hope this information reaches the Long Covid community as well, so they can make informed decisions about participating in Walitts research.
I see, that’s a big problem. But what would happen if people with ME and LC refuses to participate with him in the lead?
This is so important! Wallitt must never be allowed to get near ME and LC research again and we patients must say no to participate in his...
I totally understand. I have gotten the neurological tests as well and genetic tests. But no result. The symptoms are so weird so it was worth...
Michelle, those seizure-like episodes where the muscles in the face and neck can’t be controlled happens to me as well. I used to have them...
It might be too late to add to the questions but one thing I noted was that my MCAS got a lot worse during menopaus. ME in itself was pretty much...
She was improving after treatment, did more activities but got a short setback after a viral infection. She continued to improve after that and...
Can elevated amount of circulating fibronectin be the Something in the Blood that Davis was looking for? The signaling protein? “Fibronectin...
So sorry to hear this, Hubris. You mention diarrhea and itching everywhere. That sounds like it might be a histamine (MCAS) reaction? You had...
Swedish Long Covid research published in May 2022: https://pubs.acs.org/doi/10.1021/jacs.2c03925...
TV interview with Dr Bettina Hohberger:...
Don’t know if this has been posted before?...
Exactly what I’m thinking! There’s no way of knowing, but it sure raises a lot of questions. Edited to say that I suspect autoimmune issues in my...
I share your experience and your thoughts, Peter. I have moderate ME but became bedbound after the first shot of Pfizer’s vaccine. It lasted for...
Could this have anything to do with anti-ETAR antibodies? Or would that be totally irrelevant for this matter?
Perhaps this is of interest regarding fibromyalgia? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5344444/
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