The CFS Research Foundation (UK) was a research only org - not a patient org.
One would also have to consider that although there will be some overlap in membership between AfME and the MEA, there will be members of MEA who...
A merger was mooted in the period following the MEA's funding crisis during the 2004 post Val Hockey era, when it was touch and go whether the MEA...
I would add that the MEA Board of Trustees has been happy to receive updates on ICD-11 and other classification systems for some years now, for...
(Unofficially) because the then Chair of Trustees and at least one member of the Board of Trustees had considered at the time that I was a...
For more discussion on the MS Society and their sources of funding see:...
Well, as someone who was denied membership of the ME Association, twice, in 2004, firstly via "Chair's Action" in between meetings of the Board of...
This thread has been split from https://www.s4me.info/threads/jk-rowling-donates-£15-3m-to-edinburgh-ms-research-centre.11260/ ...I feel a...
Research Grants listed from Page 77 http://apps.charitycommission.gov.uk/Accounts/Ends57/0001139257_AC_20181231_E_C.PDF
From the MS Society site: For just £5 per year, why not join the UK's biggest MS community? Add your voice to 29,000 others to help speak up...
From April 2009: https://www.theguardian.com/books/2009/apr/10/jkrowling-mutiple-sclerosis-scotland JK Rowling abandons Multiple Sclerosis...
By comparison (extracted from my Post #11 of this thread) From the Charity Commission register:...
Worth a quick skim of the most recent Annual Report & Accounts: MS Society Annual Report & Accounts Year end 2018...
My understanding is (but don't quote me on this in case it's no longer the case)* that the MS Society has local groups which fundraise, too. It...
Compare the income of the MS Society with the income of UK registered ME charities:...
Indeed. I was not alone in considering the "Gibson Report" an embarrassment and disturbing that the Countess of Mar had been prepared to sign off...
Be careful what you wish for. We were promised a full, independent, high level inquiry by Dr Ian Gibson back in 2005. What we got was the...
Next ICD-10-CM Coordination and Maintenance Committee meeting: March 17-18, 2020 Deadline for submission for March 17-18, 2020 C & M meeting:...
Today and Wednesday: U.S. NCHS/CDC meeting: ICD-10-CM Coordination and Maintenance Committee Meeting September 10-11, 2019 Proposals Part 1:...
You might want to consider moving these posts to the existing thread:...
Separate names with a comma.
