I’d like a review of all research involving ME/CFS (or variants of the name) which breaks down results by diagnostic factors used and observed...
:woot::laugh::rofl::geek:
Funny you mention it as, just in the last 2 days, I’ve been trialing the brain cooling approach I read about for MS. Ices to cool the upper...
I would think so. But i’m a relatively recent onset and over the New Year someone asked me if I think i’m trending better or worse. I said that my...
All great comments, want a stronger like button. Clarification on ‘trigger’: yes exertion is by far and away the main trigger. However, sometimes...
Yes. Yes but I can see it both ways. The trouble is less about use of judgement (which unfortunately is always going to be present in some form -...
Wow Wow, I thought I was doing well reading to the blue part but there’s more! Sorry i won’t be able to read more before replying. 1) yes. It...
It's a good story and I am impressed with the writer and his wife. I used to love stories like this in which people push the boundaries of what we...
I agree, there is a huge amount of overblown hype and it can be hard to sift through it all. I'm having an off-day. Not a crash but not great...
I don't know of any specific healthcare for ME/CFS. I'd love to be wrong on this, that's why I'm here, looking. [So although I am not in any way...
I think the latter more than the former. But I live in a country where healthcare is generally affordable (free if declared low income). Having...
Perhaps I should have been clearer. What you and describe is what I call a crash. But, although I fit the criteria and I know that this thing is...
Nope, I worked it out and I'm now fairly stable at 30% of normal daily pre-illness function with careful pacing (down to 10% if I overdo it by 30%...
"CFS is purely a symptomatic condition." ... I read this early this morning and mulled it over a lot. As someone who has no ideas about any of...
Definite, delayed, PEM. It's what you can't ignore no matter how much you want to or have grit or whatever. Forget and act like a normal person on...
Personally: when first ill I didn't sleep more than 3-4hrs a night. Obviously also not refreshing. Now (having created a life that requires little...
(Mods please move if there is a better place for this question) Given that in the IOM diagnostic unrefreshing sleep must be present (correct me...
I've discovered (I had a very sheltered childhood in which everyone genuinely wanted to understand things) that there are a lot of people who just...
Sounds like useful feedback for the research group - is it worth sending them a short email to tell them? :) I remember finding statistical...
Thanks for this. It does describe my experience very well (although my diet has never needed much of a fix apart from more absolute preservative...
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