This is all way over my head and I still haven't watched the video but so it would be great to make progress on getting to the bottom of the...
In other words, they need everything - follow-up of patients, education of doctors, an understanding of the condition, effective treatments...
Solve do seem to post their webinars on YouTube so I'll look forward to seeing this one - it sounds very interesting.
Producing any piece of research involves hair-tearing to an extent, and patient and their academic supporters have an excellent track-record of...
On the contrary, I think patients and academic supporters would be very motivated to making it accurate.
Is that editorial really open access? All I seem to have access to is the list of names of the board. :( A pity the whole journal isn't open...
Thanks - will do that later, if someone doesn't beat me to it - bit tired at the mo.
I don't understand. What thread?
That seems to be a registry where patients register for the prospect of taking part in research surveys - though to be honest, I found it hard to...
Thanks - I'll post that here for reference: I’m reposting here a link to article about their project...
Would anyone be willing to contact Solve and ask them what they're doing? They may not be thinking in terms of the sort of social media thing that...
But when researchers advertise for patients, how can this be avoided? @Jonathan Edwards, any ideas? Studies seem to be really struggling to...
I think a world map showing recruiting sites would be good, plus something to indicate those where location isn't critical (e.g. studies where you...
Does that map work? I tried it out to see what it listed locally and nothing shows up, no matter how many hundreds of miles I extend the range.
Yes, 'Study recruiting', 'Study to start recruiting' and 'Study no longer recruiting' would be clearer (although a bit long). If there's a word...
I just had a look at that subforum, thinking it would be good maybe to paste my thread there, and I can see that there are flags to indicate...
My post has got some 'likes' so I've started a new thread about this here:...
There seems to be interest in this idea from another thread: I hope they reached the recruitment target. They seemed to be slow doing so....
I wonder if S4ME could have a working group to facilitate this - a group of people promoting specific studies when they recruit, or a group to...
I wish there were a few more whistleblowers about this kind of thing (and that the world was kinder to them). There must surely be enough people...
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