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  1. Sasha
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Thanks - that's very interesting. I don't think I've had all of that done.
    Post by: Sasha, Jun 2, 2019 in forum: ME/CFS research news
  2. Sasha
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    What would that look like? Wondering if I've ever had one.
    Post by: Sasha, Jun 2, 2019 in forum: ME/CFS research news
  3. Sasha
    Post

    IiMER International Conference Week London 2019

    Really?! That's a big step forward, and I'm really pleased to hear that IiME have taken it. Looking forward to seeing the videos! I seem to...
    Post by: Sasha, Jun 1, 2019 in forum: ME/CFS research news
  4. Sasha
    Post

    IiMER International Conference Week London 2019

    Thanks Andy - do you mean they'll be posting a link to buy the DVD (rather than posting the video footage)? Their usual thing is to allow...
    Post by: Sasha, Jun 1, 2019 in forum: ME/CFS research news
  5. Sasha
    Post

    IiMER International Conference Week London 2019

    Does anyone know if there's a DVD of the conference to order? I had a look at the IiME website but couldn't find anything.
    Post by: Sasha, Jun 1, 2019 in forum: ME/CFS research news
  6. Sasha
    Post

    Jen Brea: My ME is in remission

    Actually, this is reminding that I did go into a major remission but it wasn't instantaneous with a specific treatment.
    Post by: Sasha, May 23, 2019 in forum: General ME/CFS news
  7. Sasha
    Post

    Jen Brea: My ME is in remission

    Actually, I've never experienced that in over 30 years of being ill - certainly not instantaneously, if that's what the traction test is doing....
    Post by: Sasha, May 23, 2019 in forum: General ME/CFS news
  8. Sasha
    Post

    Jen Brea: My ME is in remission

    Thanks for explaining - I'd misunderstood your concern. That sounds like a way forward.
    Post by: Sasha, May 22, 2019 in forum: General ME/CFS news
  9. Sasha
    Post

    Jen Brea: My ME is in remission

    I'm mostly absent from the forum now but just swinging by to congratulate you @JenB! This is fantastic news. I'm so happy for you. :balloons: I...
    Post by: Sasha, May 22, 2019 in forum: General ME/CFS news
  10. Sasha
    Post

    May 2019 - Awareness Week including Millions Missing

    This is a really superb and impressive video from Sheffield.
    Post by: Sasha, May 18, 2019 in forum: Advocacy Projects and Campaigns
  11. Sasha
    Post

    Incomplete Healing as a Cause of Aging: The Role of Mitochondria and the Cell Danger Response (2019) Naviaux

    I look considerably younger than my age but I've always assumed that that was because of lack of UV exposure, because I have been mostly...
    Post by: Sasha, May 15, 2019 in forum: ME/CFS research
  12. Sasha
    Post

    Prof Chris Ponting's stirring speech about reseach at Glasgow Millions Mission event

    Your instructions were better, though! :)
    Post by: Sasha, May 14, 2019 in forum: ME/CFS research news
  13. Sasha
    Post

    May 2019 - Awareness Week including Millions Missing

    Very powerful demo - great idea, @JaimeS!
    Post by: Sasha, May 14, 2019 in forum: Advocacy Projects and Campaigns
  14. Sasha
    Post

    Prof Chris Ponting's stirring speech about reseach at Glasgow Millions Mission event

    Sometimes I need to click on the speaker icon to unmute the sound (some things auto-mute it).
    Post by: Sasha, May 14, 2019 in forum: ME/CFS research news
  15. Sasha
    Post

    David Tuller: Trial By Error: My Most Recent Exchange with Bristol

    @dave30th - this front end of BU's reply is revealing: In your emails of 4 and 29 April you ask several questions, most of which do not relate to...
    Post by: Sasha, May 13, 2019 in forum: General ME/CFS news
  16. Sasha
    Post

    May 2019 - Awareness Week including Millions Missing

    Was there any video from the San Francisco event?
    Post by: Sasha, May 13, 2019 in forum: Advocacy Projects and Campaigns
  17. Sasha
    Post

    CNN front page story about Ron Davis and Whitney Dafoe

    Excellent report by Ryan. Great that this is on the front page at CNN.
    Post by: Sasha, May 12, 2019 in forum: General ME/CFS news
  18. Sasha
    Post

    Crowfunding for a study about etiopathogenesis and try to set potential biomarkers

    Hi @Notjustfatigue - So is the call for donations solely based on a medical student saying: "Several investigations have demonstrated the...
    Post by: Sasha, May 11, 2019 in forum: Fundraising
  19. Sasha
    Post

    Building an evidence base for management of severe ME (including sleep management)

    In practice, I think that standardising wake and sleep times for a PWME is extremely difficult. I can set my alarm to wake up but might feel so...
    Post by: Sasha, May 10, 2019 in forum: ME/CFS research
  20. Sasha
    Post

    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    Is anyone planning on doing any of this stuff?
    Post by: Sasha, May 8, 2019 in forum: Post-Exertional malaise and fatigue
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