Very interesting, @Andy - thanks for reporting back.
Sorry, didn't mean to appear to minimise the results of depression being caused by events rather than being endogenous (I've seen the former and...
Thanks for that summary - I've been unable to read the paper and therefore hadn't read the plan! In terms of comparison groups, isn't it likely...
Agreed, but it's all relative and in terms of getting healthy but sedentary controls and patients from other disease groups, especially if blood...
TBH I don't care about the psych lobby at this point - I care about having good science done to get us a valid test and I think that the objection...
I'd have thought that even just having sedentary healthy controls and a single disease control group (e.g. MS) would have been hugely informative....
:thumbup: Thanks for offering but I'd prefer my message not to be posted on the PR forum. If you'd like to mention it to Ben in a PM that would...
Actually, I see @Ben H isn't often on the forum - @JaimeS, is this something you can help with, please, in terms of passing on a message?
Hi sea - I understand that no one is dismissing my experience but equally I understand all the reasons why I can't expect my experience to lead...
@Ben H - it looks as though several of us are wondering why there were no control patients from other disease groups (e.g. MS, depression). I'm...
I tried this myself for three months but it didn't help - but as you say, it helps for some, apparently. I think we had a thread on this in the...
I think we do need those studies - and in order to do them, we need something that patients already need to monitor their OI, which would be...
I made myself permanently worse in a single day when I chose not to lie down in a situation where it was difficult to do so. I really pushed...
It's frustrating that there's such a mismatch between these interesting-sounding things that Cort says about her work and what she occasionally...
Been digging a bit harder - more here from Cort in May 2018: Klimas should know – she’s been intensively charting how ME/CFS patients’ systems go...
Wondering if it's best to avoid sitting with your feet up then, whenever possible, and alternate between lying flat and sitting normally in order...
From a blog post by Cort in 2015 at https://www.healthrising.org/blog/2015/01/31/increasing-energy-neuroimmune-klimas/ ...We may have gotten a...
OTOH, is there scope here for raising the profile of how severe this condition can get? Frontiers in Medicine rings a bell - they're reasonably...
Wasn't there some suggestion that a large, rapid dose of water (either via IV or rapidly drinking a pint of cold water first thing) affects the...
So do I, and I think it's confirmation, if anything.
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