I just googled and couldn't find a trial (which isn't to say that there isn't one). Waist-high compression stockings (of the type used for OI) are...
One of the treatments for OI that some people (not me) find useful is graduated pressure stockings, often with abdominal binding. I thought that...
It's a big topic, Binkie! I've tried lots of treatments and none have made any difference. Here are some good resources: https://www.dinet.org/...
BTW, I have to go and lie down now! :(
I don't know enough to debate the value of tilt test but there is a certain amount of autonomic testing that can be done for OI apart from that,...
I think you're missing my point now! Our fatiguability means we feel bad doing anything. I think it takes extra indications to show that we...
I may well have lost the plot here but my starting point was that you said that if PWME had OI, we'd know. My point is that my symptoms and...
Fair enough, but loads of authoritative people say that POTS is a kind of OI, such as the Cleveland Clinic and Peter Rowe, who says: The medical...
I do have fatiguability in any posture, but I also have OI, as demonstrated by a positive tilt test, and have been prescribed various...
@Jonathan Edwards - I'd add that the ME charities did (and still do) emphasise POTS and always talk about dizzyness on standing in connection with...
Because it's not clear that it's being vertical that's the problem. For decades I thought it was a problem with simply getting tired quickly,...
I know, but according to the literature it also incorporates difficulty not just being standing, but being anything other than flat. That's what...
I knew I had difficulty standing up but I also had difficulty doing anything that involved expending energy. So someone would have had to have...
Actually, I didn't realise for years that I had OI - I thought I was just too tired to stay upright.
Can someone let them know?
Is there any indication of whether the talks will be posted online later?
Is that actually in the document? They seem to have left an "un" off the front.
I'm confused by that graph: [IMG] Why aren't PWME's heart rates going about 60 bpm? I thought our problem was struggling to keep our HRs below...
For anyone who wants to complain to the BBC if they feel that the BBC was biased in allowing Sharpe to present his claims about his research with...
@Simon M - see above.
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